Since you spoke of treatment at Sloan-Kettering for your bladder, I assume NYC is accessible to you. Have you consulted anyone at MSK about the breast cancer?
My mother-in-law was cared for for her breast cancer at Columbia University by J. Gregory Mears tel: 212 305-3506 and did reasonably well for a while, even with liver mets.
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...
yes estrogen and progesterine positive...HER 2 negative. Can't imagine where any estrogen is coming from..i guess my thyroid took over that job when they took everything else out.
Its just that i don't know the next step?
I must have brought in some pretty bad kharma from a past life huh? Yeah..going through the "Why Me" stage and going over all the things i didn't do right in my life. I grew up with a Father who said things like...God will pay you back. I never knew exactly what for but i was certainly under the impression that i was a difficult child but when i compare it to what kids today get into i think i was pretty tame. I didn't smoke, do drugs, have sex til i was 21....good thing i waited on the sex front as i found out i really liked it Married a closet abuser who seemed like the greatest guy in the world to everyone else but knocked me around pretty silly and convinced me i was to blame...but after 22 stitches in my heel after having a chair thrown at me also convinced me that maybe i wasn't the bad guy. OK now i'm writing a novel.......sorry.
Its just so much like my bladder cancer initial diagnosis...small 1cm tumor..looked inocuous.....ended up T2a
Breast cancer little over 1cm ..was both ductal with lobular components but all taken out with clean margins. Then the path comes back...of 3 sentinel nodes 2 clean..one nasty mean one with extracapsular extension......who knows where that has gone?? Maybe i got lucky and it was the only one and its all out but i never get that lucky. Samples still at Genome in CA and Vanderbilt. From what i'm reading the gold standard is to go back in and take all those nodes...problem is you can't see them anyway so whats the freakin point? I could opt for radiation to the axilla area but i need a really good expert on that as its on the left side and i'm, of course, reading crap about heart involvement. I'm down to 120 lbs and chemo just not an option for me...i'm sure it would kill me. I'm allergic to to many meds. So i'm sad and feeling sorry for myself and wondering what my next step is...hit major breast cancer center and get a protocol or just jump off the bridge. Plus now i have neurophathy by my left armpit where the cut was made for sentinel.....whoopie.
i'm so sorry for taking up space in a bladder cancer forum but i do appreciate your support. Gals don't forget your mammograms...i'm the Poster Child for that!