Vgau--
I'm curious why you feel "there's so much more to worry about" with BLC than other cancers? I, for one, am less worried now about BLC than I would be if I had almost any other kind of cancer (except perhaps low grade skin cancer, which is common, tends to recur, and is non fatal). Yes,the rate of recurrence of BLC is very high, but with vigilant screening (cysto every 3 months) you can catch the tumors early. Yes, tumors sometimes progress or are higher grade, but for most people, tumors are low grade and do not progress. On the BLC board here, we are much more apt to hear from people who are coping with higher grade, more invasive BLC. People who are going though life with low grade tumors and little in the way of recurrence are much less apt to seek (or give) advice here, except when they are first diagnosed or if their condition changes (e.g., they have a recurrence or progression that requires a different treatment approach). Call them the "silent majority," perhaps.
Believe it or not, you really can get used to having had a bladder tumors removed and having cystos every 3 months, and a lot of people hardly think about it in between check-ups. (I do know that some people have said they have "taken a vacation" from reading postings here because it allows them not to ruminate and to go on their daily lives without the constant reminder of BLC.)
Wishing you and all many more "all clears."
Ann