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Reasons NOT to get 2nd opinion from BLC ctr

9 years 10 months ago #28438 by mmc
Vi,

Here is a link to something I wrote in this forum almost four months ago.

http://www.bladdercancersupport.org/index.php?option=com_kunena&Itemid=114&func=view&catid=3&id=26819

It's intended to help people think through the same process as we've been talking about.

Mike
:)

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 10 months ago #28437 by mmc
Vi,

You win the gold ring!!!!

You are correct.

However, please do not thing this was specifically for you because of our other discussion. I really felt like this would be a good general post for everyone since people do searches in the forum over time and I've been thinking about it for some time now.

It is also why I thought it might be a good idea to do that flow chart I did of how to go about treatment.

I'm hoping to build on that with the feedback and great input from others on this site as many have MUCH more knowledge and experience than I do.

Please keep posting questions and let us know how it goes when you get up to UCH. The Anschutz Cancer center there is terrific and they have a geat complement of urological expertise.

Best!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 10 months ago #28435 by vgau
I am going to reply to myself on this one.
I was out doing some shopping today and kept wondering why you would post this when you and Pat were pushing me so much to get a second opinion.

Then the lightbulb went on....

I kept hoping I could get back on before someone wondered if I was a totally clueless person.

OK...there is NO reason and that is why there was no listing.

Got it...
Vi

Dx 10/5 Non Invasive Papillary

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9 years 10 months ago #28429 by Betsy Mae
Well said!!;)

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9 years 10 months ago - 9 years 10 months ago #28428 by mmc
You guessed it Pat!

There is NO GOOD reason.
Lot's of BAD REASONS, but no GOOD reason.

Bad Reasons:
It might hurt my local uro's feelings.
I'm sure it will be ok...it's only cancer.
My local urologist needs to practice on somebody in order to get experience. Why not have it be me?


:P

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 10 months ago #28425 by Patricia
This better be good Mike or you've freakin lost your mind!
1. You don't care if the diagnosis is understaged or not
2. You don't care if the local uro left margins and are seeding away for new cancer growth.
3. Ya gotta die sometime!
WHAT?
Pat

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