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Reasons NOT to get 2nd opinion from BLC ctr

9 years 1 month ago #28473 by GKLINE
Great post Mike! At first I thought you had turned into a kurmudgen... but alas you resurected yourself and exposed your true whit.

Those of us who thought you were serious? Just whitless I guess.:laugh: :laugh: :laugh:

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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9 years 1 month ago #28453 by mmc
Pat,

Yeah....I know. I could hear your voice in my head in a very loud tone when I read your initial response. Don't know what you look like but I did imagine your hand held high in the slapping position! :huh:

I originally read your response when I was sitting in the car parked in front of Massage Envy, waiting for it to get closer to my appointment time. I checked the postings on my iPhone and started laughing when I saw your post. Then I said "Ooooops, Pat thinks I've gone off the deep end! I better fix that post later today."

Then I saw Vi's post, and saw that she also thought I forgot to put the information in there or something, so I knew I needed to get it fixed before swarms (do BLC warriors swarm) of BLC warriors swooped down on me from the skies and pummelled me for my craziness.

I thought "<This Page Intentionally Left Blank>" was a good indicator that there are no good reasons, but once I saw how it was being interpretted, I went back and edited the post. Hopefully, it is clear to everyone now and we put a link to that post from the "What to do when you are newly diagnosed" page.

I personally think there should also be a link to the flowchart I posted but I'm not sure if that would mean that ABLCS was "advocating" that post or something.

Maybe the flow chart needs a disclaimer that says something like: The information presented here is not necessarily the opinion of ABLCS, its sponsors, or affiliates.

That's what TV stations always seem to put up as a disclaimer.

Maybe I'll put the following text in my signature line:

I'm just a guy that posts here and I do not represent the ABLCS, the AMA, or any other organization or acronym. My opinions are my own and not intended as medical advice. Always get medical advice from professionals whom you pay tons of money to for their opinions. Then do what YOU think is right. Not me, not them, YOU!

[/i] :P

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 1 month ago #28452 by Patricia
you got that right Mike....at first glance after 7 yrs of advocacy all neurotransmitters went into a frenzy and my sense of warped humor left the building.
:S
pat

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9 years 1 month ago - 9 years 1 month ago #28451 by mmc
If it makes you feel any better, you were not the only one that did not get it at first.

Pat thought my mind took a long walk off a short pier. She'd have slapped me if she'd been in the same room. :blink:

That's why I went back and changed the post to put in the number 1 and 2 reasons instead of having the original:
<This page intentionally left blank> message.

:D

I have a strange sense of humor sometimes so occasionally (especially when it's tongue in cheek)I have to clarify. That's my own fault, nobody else's. :)

Mike

PS: To read the private message, go to the HOME page. On the right you will see some buttons. One is called "Mailbox". If you click that, it will show you your mailbox folders and you can click on Inbox to read the message.

Another way is to click on the login tab at the top of any page. When you are logged in and you have a message it will indicate that in the tab that comes down from the top. You can click it from there and it will take you to the mailbox also. It's just a matter of which method is your preference.

The web designer gave us some options, which is pretty cool.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 1 month ago #28450 by vgau
Somewhere I guess you sent me a private message. Don't know how to find that. However, I never took offense to this message or thought it was meant for me alone... actually thought it was good. I was frustrated with myself because I do think I am somewhat intelligent and your post went over my head for a while.

Dx 10/5 Non Invasive Papillary

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9 years 1 month ago #28439 by Cynthia
I found it interesting that this thread started as I was writing this answer for one of the questions Webs asked for my interview with her.

Webs---What would you like us to know?

Cynthia----To someone newly diagnosed?

Go to a bladder cancer center of excellence and get a second opinion from someone who specializes in bladder cancer. Make sure your pathology report is reviewed by a major center that deals in a high volume of bladder cancer. This does not mean you cannot use your local Urologist. It just means that there is a treatment plan formulated working with someone who specializes in bladder cancer not general urology. For the majority bladder cancer is survivable if they have their regular checkups and get treatment if needed. But proper diagnosis and treatment from the beginning are vital to a good outcome.

Vi you are probably right and it is low grade as your Urologist says. And in that case bladder cancer for you may be as easy as regular checks. But it is too important not to make sure.

Welcome to our community.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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