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Just starting the journey

10 years 2 weeks ago #28401 by Patricia
Vi...if the pathology report says Ta low grade and its a well differentiated tumor(under 3cm) then follow up is all that is needed at 3 months. Some doctors do not give the mytomycin.
My only problem with this is that the doctor did it in the office not a hospital and its important to get the margins around the tumor. That can be painful which is why they do it in a hospital under anesthesia..
My advise would be to get a second opinion from a top doc at the U of Colorado. Take all your scans in and your path slides and see what they have to say in their pathology lab to set your mind at ease. You may be one of the more fortunate ones where it does not recur.
Don't get ahead of yourself. But it just makes sense with a cancer diagnosis to get a second opinion.
Pat

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10 years 2 weeks ago #28399 by vgau
I'm not sure what seeding is and I've read that cauterizing the cell is a way to kill it.

Dx 10/5 Non Invasive Papillary

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10 years 2 weeks ago #28398 by mmc
Vi,

From your blog post, you had indicated that your uro did this procedure in the office. I'm not sure he's really being all that aggressive. Usually, when cancer of the bladder is found, they do a TURBT in a surgical center where they cut around the area and send it all to pathology to ensure good margins.

They also often use mitomycin to wash the area to try to prevent "seeding".

I'm sure other's will have thoughts.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 2 weeks ago #28397 by vgau
I am just newly diagnosed with bladder cancer. I think I am one of the lucky ones because my pathology showed Ta Non-invasive papillary carcinoma. The one cell found was very small mm. size and was cauterized. I am now awaiting my next scope in December. My doctor seems very aggressive even though it is low grade so I'm all for that.

Now, I am wondering about what I can do to keep this away. I've gone a little crazy with the research and sometimes I think that is both good and bad. I go from happy we caught it so early to scared because sometimes it sounds like that doesn't matter.

I'm thankful to have a place to read about others in the same situation and people to ask questions when I am between appointments even though he said just to call when I had a question.

Do people tend to spend more time on the Forum or Blog section? I've posted in both which probably wasn't best.

Thanks for being here

Vi

Dx 10/5 Non Invasive Papillary

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