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How it begins...?

15 years 2 weeks ago #24889 by Stephany
Replied by Stephany on topic How it begins...?
Britt, my husband's started with blood in urine....bright red. He called his uro right away, got in right away, got a TURBT right away, and was diagnosed right away. The blood is the first sign, and although we wish that it would go away, it doesn't. And although we wished it would be benign, it wasn't.

That's just how it happens sometimes. That's why this list is SO important!

Stephany in Iowa

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15 years 2 weeks ago #24882 by mmc
Replied by mmc on topic How it begins...?
Yes, the cancer causes bleeding. It is one of the symptoms. Sometimes it is just a little in the urine that you wouldn't even see, sometimes it can be like rose' wine, and other times a deep red. Sometimes there can be clots and other times not.
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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15 years 2 weeks ago #24881 by britt
Replied by britt on topic How it begins...?
Now that I know what I have I would run to the dr with the slightest abnormality! I was just wondering why I had the closts. Does the cancer cause bleeding? I just find it suprising that it hadnt happened since then. It was over a year before I was treated.

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15 years 2 weeks ago #24875 by mmc
Replied by mmc on topic How it begins...?
My first clues were UTIs. Then I noticed some blood but no clots. That's when I had CIS back in 2006.

In September of last year, I had some blood clots. It was shortly after having a cysto that looked all clear. Called my Uro and he brought me in the next day for another cysto. It also looked clear but he did an NMP and FISH test and those both showed the cancer had returned. The clots would come every couple of days or a week but when they looked in nothing looked out of the ordinary.

It can be strange. Now that you've had a tumor, any time you have clots appearing you should mention it to your uro.

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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15 years 2 weeks ago #24870 by Alan
Replied by Alan on topic How it begins...?
Britt,

I passed blood clots just once and IMMEDIATELY called my family doc. He took a urine sample and treated me for an infection. After a week a urine test still showed microscopic blood so he sent me to a URO. Sometimes it's stone, sometimes there are unexplained never diagnosed bleeding. For me it was a small tumor. The consensus was (I was taking heavy doses of aleve/not ovredoses for a little arthritis) the aleve helped cause the bleeding. That kind of drug can cause it anywhere in the body. URO ordred a CT scan-pathologist missed it (.5 CM) and said no tumors visisble. My URO looked at the film also in the 1/2 hour to dress & drive this office. He saw a shadow-he was going to scope me either way and found it!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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15 years 2 weeks ago #24868 by sara.anne
Replied by sara.anne on topic How it begins...?
Britt, some have some blood, some never have any (me, for example.) Some have it once..some often. My father had a very small amount ONCE. Luckily, he went to the doctor. In his case it was kidney cancer.

That is why you see the advice that if anyone EVER sees blood they get to a urologist.

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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