Well, I got up early to make my way to San Francisco (3 hour drive) for my pre-op labs today and Dr. Konety called me before I left. He was reviewing my path slides and saw lymphatic involvement (angiogenisis) and decided to cancel the re-TURB and order 3 rounds of chemo instead. Then, re-biopsy and discuss further treatment, possible RC in late June. I have an appointment tomorrow for the first time with an oncologist and Dr. Konety will try to reach him before the appointment and tell him his thoughts. This is more in line with my original local uro's ideas as he made the appointment with the onc. The only thing they disagree on is Konety did not see CIS on the path slide and does not recommend radiation. My uro did see CIS and wanted to do a combo radiation/chemo protocol.
What do you do when your 2 docs disagree? I am leaning towards chemo only, due to side effects of radiation at this time, but still not 100% sure of what to do. I don't want to miss any potential benefit of radiation. It is a three month long protocol and Dr. Konety recommends 4 drugs including Gemcitabine and Cisplatin, not sure what the other two are. I will have to take three months off of work. Any one have any thoughts on this? I think after this I will post in the muscle invasive forum because I don't feel so newly diagnosed right now.
Thank you!