11 years 5 months ago - 11 years 5 months ago#22795by Patricia
Another place you might consider ..though i would try MD Anderson first..is UT Southwestern in Dallas. Dr. Raj Ganesh there is very good and trained with the best......... There is a number there for you to call to make an appointment.
just hit his name with your cursor and you'll get his profile and phone number
11 years 5 months ago - 11 years 5 months ago#22793by wsilberstein
I remember when my mother was dying of leukemia and had pneumonia, and I asked them to give her a transfusion for her low hemoglobin because we pediatricians always transfused kids with packed red cells if they had a low hemoglobin and difficulty breathing to deliver more oxygen to the tissues. The doctor tried to convince me that giving a trnasfusion is like doing an organ transplant. It's amazing what doctors will say (overstate) to make their point. You'd think he thought he was talking to an idiot rather than a colleague.
All radiation is cumulative over a lifetime. Therfore care should be taken not to do unnecessary x-rays. CT scans cause significantly more radiation exposure than simple x-rays. Still, a single CT scan done for a good reason hardly puts the patient at significant risk. You don't even have to sign a consent like you do for surgery. That should put the risk in perspective.
To avoid unnecessary risk and medical expense, procedures should only be done when there is a good reason, but overstating the risk does not help the patient understand and make informed decisions. Shame on your doctor.
I'm not sure that a CT is necessary. If it is low grade and non-invasive you shouldn't need a CT; however, without a proper biopsy for staging and grading your doctor would need a crystal ball to give you treatment recommendations. That's why everyone here is suggesting a re-TURB (for you an initial TURB ) and a second opinion.
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...
Last edit: 11 years 5 months ago by wsilberstein. Reason: character error
I just went up to my OB/GYN's office to talk to them...she is the one who referred me. I told them all whats going on and one of the nurses said that she went through something similar when her daughter had cancer in her pancreas and then spread she referred me to a specialist in Temple that took care of her daughter there.
I'm going to find out Wed if i can even get a second opinion but i don't see why not. A lot of doctors take tricare so hopefully it wont be a problem.
If all this is happening since your procedure in the office with the Uro I would suspect something else. I personally would not go back to this Uro..i would seek the second opinion NOW....call MD Anderson and see if they accept your insurance...they may not..they're picky......
This is a quote from the American Cancer Society's Bladder Cancer information pages.
Blood in the urine or changes in bladder habits: These can be signs of bladder cancer. Other signs might include having to urinate more often, or feeling as if you need to go but not being able to do so. Although these problems can be caused by something other than cancer, do not ignore them. Be sure to talk to your doctor if you have any of these symptoms.