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A question from tomd

10 years 7 months ago - 10 years 7 months ago #21357 by Cynthia
My reply to Tom,


Here is your link to the post I made for you.

Lets us know if you have more questions and also what you do. I have no idea what you have if anything but I do know people that I have lost because they put off what they didn't want to deal with; and ones that had negative cytology's as well. Remember if caught early it has an over 90% rate of servivabity. With cancer as with many things in life timeing is everything, remeber there are no redos here is you make the worng decition and luck is not with you. Another key to serviving well in my opinion is being your own advocate and knowing where to find the best treatment. If blc is part of your path we will find others here walking the same route you are. Please keep us undated we love great news and offer freindship as well as perspective and understanding when it is not.

Chin up and straight forward

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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10 years 7 months ago #21345 by michstate89
I would have to agree with everyone else here - go through with your scheduled procedure.


Ross M
TaG1 March 06
Recurrence Jan 07
BCG Maintenance after 6 week treatment

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10 years 7 months ago #21342 by Flamenco.
No question about what I would advise. Go for the turb and biopsy. With luck you may have some tests that come back negative , but if not, you know where you stand, are in good hands early enough to treat whatever may be found, and if you need more info , have come to the right place to find it

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10 years 7 months ago #21339 by sara.anne
ABSOLUTELY have the turb/biopsy. It is really "no big deal" and will answer an important question. Urine cytology is not that reliable..
We will all keep our fingers crossed that your biopsy results are negative, but if they aren't, you will be on the right path.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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10 years 7 months ago #21338 by Nix
I certainly agree with the others. All my tests,urine cytology, NMP22 and the FISH have come back negative - even two weeks before I had CIS Flathead tumors removed. The best offense is a good defense. I always like to error on the side of precaution.
Good Luck



Nancy S
dx Ta 11/06
dx Ta CIS 10/07

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10 years 7 months ago #21337 by pemquid
Absolutely do the cystoscopy and biopsy. CIS (carcinoma in situ) is flat and not likely to show up on a CT scan. Cytology is almost always negative for lower grade tumors. You have risk factors for bladder cancer (male, smoker); the aspirin may have made bleeding worse, but I suspect that may not have been the root cause (but I'm no medical expert). Under the circumstances, it would be very wise to proceed with the scheduled cystoscopy and biopsy

I'm not in a high risk group for bladder cancer (female, non-smoker, no chemical exposure). However, after one bout of gross hematuria, my doctor got me right in for tests (CT, cytology--negative) and to a urologist for cystoscopy. Had a single papillary (low grade) tumor removed. That was 2 years ago, and I had no recurrence during that time, but recently had two tiny new tumors (same type) removed, and have just completed 6 weeks of BCG treatment to slow up future recurrences or progression. Bladder cancer may be one of the more easily controllable types of cancer, but you have to be vigilant in getting checked and in being treated for any recurrence.


Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

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