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just diagnosed - need advice

10 years 11 months ago #18136 by Patricia
Robm....Dr. Paul Lange is the uro that Melodie saw at U of W...bio very short...as are all of them...but i hear he's good...
http://medical.washington.edu/bios/view.aspx?CentralId=16036
Pat

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10 years 11 months ago #18135 by robm
first of all - thank all of you for your support and advice -- my mind has been in a much calmer state since reading your posts --


PAT -- this started about 3 mo. ago -- uti / minor minor (almost non detectable) bleeding and then a c- scan/kub - day affter the scan my md advises me that i have a huge tumor - and well you know the rest -- will definitely check into uw md's - curious about "worst bio's"

just hanging on until tues.(cystoscopy) -- i'm so glad i stumbled onto this web site

thank you again --- later r.

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10 years 11 months ago #18124 by Patricia
Hi RobM...how did you find out about the mass in the bladder...what were your symptoms? CT scan?
Only advise i would give you as i know brain cells are just not connecting at this moment....make sure you are with an Urologist who deals with bladder cancers and women and not just prostate cancers. They are going to want to take a look inside there and obviously schedule you for a TURB in a hospital setting and you want someone who has done this a LOT.
The U of Washington in Seattle is on the NCI list and ranks high in best hospitals in the US...i have no idea of their urologic expertise but here is a list of the uro's that practice there...they should have some expertise but its the worst list i've ever read from a top hospital for bio's on their physicians and special expertise.
http://medical.washington.edu/bios/Default.aspx
Melodie and Rah both had their surgeries in Seattle..hoping they will jump in here soon..

I do know of a great surgeon in Portland should it ever come to that.....however as everyone else has said...breathe...sometimes the larger tumors are believe it or not superficial.....
Pat

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10 years 11 months ago #18120 by flamenco
Hi Robm,
Slow down, and just go in one direction at once - forward ! As everyone on this site will tell you, the worst time is when you don·t know, when you·re waiting for appointments and test results. As soon as you have a diagnosis come back and let us know, I guarantee there will be someone here who can advise you best what the next step should be.
Kind regards, Flamenco

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10 years 11 months ago #18117 by PeterK
Hi Robm,

Take one day at a time and breathe. I agree with Holly, until the doctors run more tests you won't know what you are dealing with. Until I was fully diagnosed, I tried to distract myself with activities. I know it will be difficult, particularly at night, but hang in there. Let us know how you are doing.

Regards,

Peter

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10 years 11 months ago #18111 by mznoregrets
Hi Rob,

Oh Yes - BREATHE ;D We all went into shock when we heard the C word so you are doing like we did....Keep breathing :)

Right now you do not know exactly what kind of bladder cancer you are dealing with so don't get ahead of a diagnosis yet. That is difficult I know. Remind yourself of that often. There are many forms of bladder cancer any much of it is not life threatening. Breathe. You are not alone in this - we are a family here and can offer good advice and tips in the journey you have been thrown into. Ask questions - someone here has likely been thru it or thought it too. Thinking the worst right now will only make you more distressed. Keep breathing :) God Bless, Holly

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