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just diagnosed - need advice

10 years 5 months ago #18588 by Patricia
Moving you up a notch........P

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10 years 5 months ago #18296 by Melodie
Robm,

I have tried to contact you from my home email at Yawhoo and via work...when I sent it at work, I got a kick back. I hope we can talk soon. I will PM you. Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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10 years 5 months ago #18188 by Gene Beane
Robm,
Hi from Cleveland Ohio, my husband had a 2 x 4 cm invasive tumor, don't get worried and fret yet!!! It could be many different scenario's, so wait for the specialist, see what he says, in any case your going to be fine, so many wonderful specialists out there now in this field,,please keep up and let us know whats up!!

Ginger

Hospital Cleveland Clinic r/c Sept.14,2007
Surgeon. Dr Stephen Campbell and Gill
Gene Beane..66 Ford Motor Company
Engineer, retired Vietnam Vet

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10 years 5 months ago #18166 by fearandfight
Robm I was dx with a 10 cm tumor 1/18/07 and nothing was going to change that but it is not the end of the road. After I saw the Uro that told me this I knew he wasn't the Dr. I wanted. This is when I chose the hospital I wanted to be treated at and that was the Univ of Penn because I live near Phila and it is an excellent hospital for treating cancer. The ironic part is it is the hospital I was born at and also the hospital that saved my life. I was dx a T3 G3 and you can find all this info on the home page. Today I am celebrating one year cancer free so keep breathing. Best Of Luck, Joe



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10 years 5 months ago #18160 by Melodie
RobM,

Hi! Welcome to the forum....this form was a godsend to me in 2007 when I found out that, I, an otherwise, very healthy 56 year old, was diagnosed with BC. This site will offer much info. and lots of emotional support.

I had my TURB done by a urologist in Edmonds, a Dr. John Maldazys, in early March 2007. He was the urologist who first diagnosed me and asked if I could go in for surgery two days later and so I did, at Stevens Hospital...at the time I believed my cancer was only superficial. Right after the TURB, he came in and told me that it was invasive, in the muscle, and recommended 3-4 months of chemo and then surgery to have it removed. I had to remain in the hospital overnight so they could take additional x-rays to ensure the cancer had not spread. Dr. Maldazys was very straight forward and probably very good...but no bed side manner...which is true of many surgeons.

I didn't like the news and was determined to have at least 3 opnions from doctors in other locations. I saw two different surgeons and three different oncologists before I settled on Dr. Lange, who was at the time, the head of the Urology Dept. with UW. I decided on the UW for my surgery and to do my chemo at Skagit Valley Hospital since I live in Mt. Vernon and wanted to be close to home. Dr. Lange has recently resigned as head of the department as he is planning on retiring. It may be that he is still seeing patients...? I have never seen those bios that Pat had the link for...they don't tell us much about the doctors.

Since the surgery I have seen Dr. Jonathan Wright, who assisted Dr. Lange for my RC, but he is not taking any new patients at this time as he is doing mostly research for the next year. I'm not sure who I could refer you to over there but I'm sure there are some other good doctors at work in Urology there.

I had three months of chemo and then had my RC at the UW late last June and spent 10 days in the hospital. I was very pleased with the nursing care there and the doctors. Since it is a teaching hospital, there is a medical team that follows up on the patient during their stay at the hospital so I was never lacking for attention and care.

I am sending you a PM with my phone number and email if you wish to contact me outside the forum. I work in Everett and have a long commute, so it's best if you try to contact me this weekend at home if possible via phone or email...week days I'm usually in bed by 8 p.m. Wishing you the best. Melodie


Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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10 years 5 months ago #18142 by Maria
Hi Robm, this is a great place for advice, like others say it is a shock with this dx. Try not to become to preoccupied, it is normal to be anxious........easier said than done........ Prepare yourself for your appointment, take a list of questions, ask advice and questions here and we will all try and help.
((((((( hugs )))))))) Maria x

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