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Bladder Cancer Maintenance Program

10 years 6 months ago #17331 by Mom
Rosemary,
Thank you so much for your response. I sent your reply on to my son snd hope he will contact Dr. Lamm as before..

Does the 'maintenance' program have the same amount and length of BCG treatments?

What exactly was your 'maintenance' program and how many cystoscopies (sp?) did you have? How often now?

What is your program now?

What is the success rate of completing the 'maintenance' program for bladder cancer patients? My son was told only about 15% complete the 'maintenance' program.

Mom

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10 years 6 months ago #17250 by Rosemary
Dear Mom,

I managed two rounds of maintenance BCG but was taken off because of a severe arthritic reaction. We tried to reduce the dosage, which didn't seem to help me at all, however, Dr. Lamm recommends that reducing the dosage may help to reduce side effects.

Please see Dr. Lamm's site where he discusses the use of BCG for Bladder Cancer treatment.

You can actually go to the link below and ask Dr. Lamm a specific question concerning bladder cancer treatment. He has always very kindly responded to our direct queries to him....Good luck...

http://www.bcgoncology.com/drlamm/askdrlamm.html

Best regards,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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10 years 6 months ago #17248 by Mom
Are there Maintenance Program patients out there thay would like to engage in Maintenance Program discussions?

My 44 year old son completed with difficulty his 6 week BCG, had cystoscopy and began the 1st Maintenance Program treatment. He was extremely sick with his 1st treatment and had to go to the ER two times. He had fever, sick to stomach, pain and passed a lot of 'garbage'. He still is not up to speed after 3 weeks.

Would like to hear from others in the same program. Is it the same number of treatments for all? Side effects?

Thank you,
Mom

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