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Results :(

10 years 6 months ago #17853 by mssmr
I know journies differ and I have a relatively rare, chemotherapy-resistant tumor:
sacromatoid tcc.

I had two cycles of mvac and my cancer grew. I had radiation and may cancer shrank.
I scheduled an rc but had mets before we could do it, so we didn't do it.

I still have my bladder and my mets and we are still fighting with stronger and stronger chemotherapy (Ifex + others)

Just one warrior --

Susan

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10 years 6 months ago #17847 by newbie08
Hi Mssmr,

Thanks for your opinion!

SK recommmended 3 months chemo (Gemzar/Cisplatin) then 1 month off and then RC!! What do you think of that? Did you do this type of treatment?

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10 years 6 months ago #17373 by mssmr
Hi -- I'd definitely go for the RC, pending the results of the S-K opinion.
I got chem, radiation, then planned an rc. Too late for rc, it spread. My advice,
take bladder, ask questions and do chemo, etc, if warranted, later -- Susan

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10 years 6 months ago #17199 by newbie08
Sorry to hear that, not fair >:(

I PM'd you there :)

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10 years 6 months ago #17194 by grampadonut
just got off phone w/ sloan-kerrting..very up-set..no one knew where slides where..didnt know who i was..
long story short..lab was late in sending slides
after that started to give lady in nyc my background and she said "when can you come in'!!!!..what !!
took awhile but got it striaghtened out ...gggrrrr
s/k doc will review slides..within a week (we're almost @ 1 month) and let doc or me know (which one ???)
1 small step..i guess :-)

grampadonut
dx t2-g3
05/07/08

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10 years 6 months ago #16903 by grampadonut
you can contact via the web
set-up phone consult..well worth the time
we should hear something early next (i hope)
HEY ..may see ya in NYC !!! :-)
keep pressing..you only have 1 dad

grampadonut
dx t2-g3
05/07/08

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