Thanks Wendy and Lou for your quick come backs.
I did see the path reports, first from our local hospital where the TURBT was done and also talked to the Pathologist that did the work there as well as a second opinion read by UCSF. They said T1 with lots of low grade cells and a few high grade cells so they had to call it high grade. Gave no number to it like G3. It was also reviewed by UCSF, where we are now getting follow up treatment from the best of the best uro-onc team. Their path guys agreed with the first reading. A follow-up bladder mapping (random biopsy) was done by the UCSF team 1 month after the original TURBT was done in our local med center. The results of the random biopsy show no further cancer and that the muscle cells where the original tumor was resected were also clean.
My ongoing nagging concern is: Because this darned thing was around for 3+ years how can they be sure that the lymph or circulatory systems did not provide a pathway for cancer cells to spread elsewhere? Even though I understand that most authorities in the field think Stage 1 disease remains localized, why would they not do a lymph node biopsy, do labs for other organ disease (i.e. liver) and CT of abdomen and/or chest?
I'm just a Nervous Nelly that does not want to miss anything and then regret hat I did not advocate stronger for my hubby's holisitic care plan.
Deb