I had the urogram in around 1/12 and about a week later the urologist called and said they want to do a cysto. This immediately freaked me out becuase I thought that they must have found something and they wanted to investigate further, the Urologists office had no idea and said that it was routine and I shouldn't worry about it.
The CT Urogram is a good test, but it can't see everything that a cystoscopy sees. It cant' show flat tumors like CIS, and small tumors may not be visible. The cystoscopy is just as important to definitively rule out cancer as it is to find it early and treat it before ti becomes a problem. Even though tests make patients nervous, one must always rule out the worst case scenario - in this case bladder cancer. You could never be truly at peace without knowing for sure that you don't have cancer, and if you do, it's best to find it now rather than later.
All of us have been scared before our diagnosis, and we have the pleasure of being scared again at follow ups because we worry about recurrences - but there is life after cancer. I'm 7 years out with a high grade cancer and have never had a recurrence.
You may have nothing, so try to stay clam. If you have something, you'll be treated, and we'll all be here to help you deal with it.
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...