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34 year old newby in Seattle

12 years 1 month ago #12787 by fearandfight
Cynthia I just got over 2 UTI's and having a sense of humor to a point and a positive attitude and being a fighter were the keys for me and in August I found out I was cancer free as of now. Now I just spent 10 days in the hospital for MRSA in my blood and I am getting 2 doses of Vicomycin daily at my house thru an IV till 2/22/08. So I guess my sense of humor ain't at it's best right now sorry. Hey what can I say we all have our days. Cheers, Joe ;)

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12 years 1 month ago #12785 by wendy
About spell checks. You will have it if you use Firefox, which has this software built in. It has nothing to do with the forum more to do with the browser you are using. If you use IE, no spell check will appear as an option.

I use Firefox and it's great.
Wendy

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12 years 1 month ago #12781 by Maria
Hi Lynn, sorry to meet you under these circumstances. You will find this forum extremely supportive and the first page offers good education and research articles.

For my TURB I stayed in the hospital overnight, had a cath in place after surgery which was removed the following day. Made good recovery and was back to work after 4 days!

Good luck to you.
Maria x

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12 years 1 month ago #12773 by Cynthia
Lynn,

So sorry that you have to be here but happy you have found this group. As you know until you get your pathology report you will not know what your treatment path will be. Let us cross our fingers that all shows non invasive, remember the size of the tumor does not mean it is invasive nor indicate grade. Also do not forget that statistics show that the vast majorities who have blc will do well.

As far as a catheter following TURB I had a total I think of ten of them and never had a catheter following one. But there was one where I had a lot of bleeding and life would have been easier if I had one. So if you wake up with one don’t worry it will be for the best and just short term.

We are seeing more and more young people with blc. We talk a bit about the fact and can not decide if it is because we are web based and will hear from a younger audience or if the statistics are changing. From talk with top specialists I am beginning to wonder if we are seeing a shift. We know in part that blc is an environmentally induced cancer could it be that the shift since WWII to more food additives and environmental pollution is now becoming apparent? The answer to that thought remains to be proven out and will take years of research.

You are doing the most important thing I think you can do in this situation. Becoming an informed medical consumer, know we are here for you and please let us know how you are doing.

Sodcat,

I agree with you over the spell check and the site will offer one in the future. Right now what I do is type my posts in my Microsoft word and then copy and paste.

Joe,

I understand you’re wanting Lynn to realize that this is a serious disease that bears watching and dealing with. Her being here and educating herself shows she is very aware of this. But please remember that everyone deals with the stress of this situation in their own way. I for one feel that a sense of humor is one of the greatest saving graces any of us can be blessed with. I read recently about a group of comedians in NYC that were doing stand up about having cancer. The following is part of something I wrote about humor and cancer.

"I have sat taking chemotherapy with a woman (ovarian cancer) who knew she would not see this Christmas with her children, and laughed until we cried about silly things. I have seen bald headed children laughing and playing as if the world was right toting their IV poles around the infusion unit. I have read things in chat rooms and list servers form other survivors that would hold no humor for others but make me smile because I know where they come from. I have found humor in things I would have been appalled at a year had a half ago. I have made jokes about glowing in the dark, being bald, bodily functions and a few things better left unmentioned. And in that humor I have found hope. The human spirit is stronger than the cancer. I really have no choice about what happens to me in the future. But I do have a choice how I handle it. Do I sit around and cry the rest of my life about what a rotten hand I have been given? Or do I find joy and laughter given the opportunity? I would think the answer would be obvious, what a waste to cry when you can laugh. And I think that is the most important part of the story."



Chin up and straight forward.

Cynthia

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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12 years 1 month ago #12771 by Rosemary
Hey Ale,

If there is any way to stay over night for TURB, then that is the ticket. I've had two TURBs and I had read here at the forum that if you can overnight it, it's the best way.

I had a cath after both my TURB's but only for the overnight, so in the morning when they were ready to cut me loose, all was well, and the bleeding had pretty much stopped for me. I guess my Doc did a good job of cauterizing.

I was 54 at time of Dx. Bladder Cancer is rarer in women and even rarer in women your age, but, as you will be able to tell by reading the posts at this forum, it is hardly UNHEARD of.

My Doc said my tumor was larger than he expected. It turned out to be the size of a quarter.

Please keep us posted as to how it goes. The time between TURB and pathology results is the worst of all. I took the whole week off (which wasn't necessary at all) and sat in my chair drinking herb tea and solving Sudoku puzzles..,,

Your new bud,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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12 years 1 month ago #12770 by gcurt
Hi Ale
st wishes
I had TURBT 12/07. I did end up with a Foley because I wasn't able to urinate after the procedure. I had the cath for about 3 days. In my case the urologist removed some precancerous cells from my prostate as well as CIS tumor from my bladder. Since a swollen prostate won't be a problem for you maybe you'll get by without the Foley.
Please do everything you can to maintain that great sense of humor you have. :)

Best Wishes
gcurt

Dx: CIS 12/07

Happiness is not a station you arrive at, but a manner of traveling.
M. Runbeck

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