Forum

× Welcome click the New Topic button to post

Getting biopsies tomorrow

11 years 2 days ago #11647 by wendy

Got the results of the biopsies, no malignancy!!!! But do have cystitis which may be why I am feeling crummy. Infectious disease doctor gave me 2 week course of prednisone and 6 months on Iozionide, yesterday. I am waiting to talk to my urologist today to start on these meds.


Yikes! That must mean you have a BCG infection...in which case you're very lucky to be doing as well as you seem to be! I hope you stay well, and clear too!
Wendy

Please Log in or Create an account to join the conversation.

11 years 2 days ago #11642 by Rosemary
Archrock,

This is great news! ;D

Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

Please Log in or Create an account to join the conversation.

11 years 3 days ago #11628 by archrock
Got the results of the biopsies, no malignancy!!!! But do have cystitis which may be why I am feeling crummy. Infectious disease doctor gave me 2 week course of prednisone and 6 months on Iozionide, yesterday. I am waiting to talk to my urologist today to start on these meds.

Please Log in or Create an account to join the conversation.

11 years 5 days ago #11549 by wendy
Hi Archrock,

Sometimes people who react badly to BCG are offered BCG (low dose) plus Interferon. It is very effective and less toxic. More expensive though, so not usually given unless BCG causes reactions and your insurance will pay for the newer combination. Worth asking, perhaps. More info here:
http://blcwebcafe.org/interferon.asp

Regular old BCG can also be lowered in dose without losing effectiveness. Discuss this with your doctor too (and more info on WebCafe's BCG page).
Wendy

Please Log in or Create an account to join the conversation.

11 years 6 days ago #11487 by archrock
Had the biopsies, waiting for results. My doc said that it all looked great, could see no tumors and he didn't put in any chemo. I will find out about biopsies on Tuesday. He told me that I may have BCG once a month for 3 months followed by another cysto, with this pattern for the first year. Depending on biopsies will determine need for cysto in hospital. I left feeling okay, despite still getting cyclically ill with sore eyes and nauseus feeling every few days.

I am getting followup with infectious disease doctor on Wednesday to see if I reacted badly to BCG.

Please Log in or Create an account to join the conversation.

11 years 1 week ago #11430 by maxmag
I ALSO HAD BIOPSIES AFTER BCG TREATMENTS.
THOUGHT THIS WAS VERY WISE OF MY DR.(BTW,I WAS CLEAN)
SOUNDS LIKE YOU HAVE A GOOD DOC THERE.
GOOD LUCK,
MAX

Max
Age 70
Ta G2
Dx March 2007

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 296 Guests 

Statistics

Total Messages: 50864 Total Sections: 1 Today Open: 0 Today Total Answer: 0
Total Subjects: 6517 Total Categories: 11 Yesterday Open: 1 Yesterday Total Answer: 2
Total Users: 7779 Latest User: Taross
Powered by Kunena Forum