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Newly Diagnosed in Canada

11 years 3 weeks ago #11002 by Patricia
Well if its into the muscle its definately in the T2 range ..could be low 1or2 or high grade 3or4 but when it invades the muscle most surgeons say..get it out of there....I hope you find a surgeon soon and a plan. I wish i knew more about the system up there...We had one canadian on here who was not given a choice of surgeons until he realized as he was in the advertising business that he had done some promotional work for one of the hospitals and used that as leverage to get the surgeon he wanted. I'll try to find him for you. Pat

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11 years 3 weeks ago #10991 by maxmag
HEY STACKER,
YEAH,THE WAITING IS LOUSY.
THERE ARE A LOT OF KNOWLEDGEABLE FOLKS ON THIS SITE.
I'M SURE YOU WILL BE HEARING FROM A LOT OF THEM.
I'VE BEEN TO HAMILTON....NICE PLACE!
GOOD LUCK ON YOUR UPCOMING SCOPE.
TRY TO KEEP YOUR SPIRITS UP..THINK POSITIVE.
AFTER THE INITIAL SHOCK OF BEING DX WITH THIS DISEASE,
I TRIED LEARNING AS MUCH ABOUT IT AS I COULD...WHAT ARE MY OPITIONS ETC.
I REALIZED THERE ARE MANY TREATMENTS..SO KEEP YOUR CHIN UP.
YOU WILL DO ALRIGHT.
WELCOME TO THE BLADDERHOOD,
MAX




Max
Age 70
Ta G2
Dx March 2007

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11 years 3 weeks ago #10984 by joeburg55
Hi Stacker , my Name is Joe, I was 51 when i was diagnosed, they told me that was considered young, Get the doctor to grade it, then you will have a better idea, Do you Smoke? if you do Quit!I went the bladder sparing route, i was T2,N0,M0 grade 3
get that info first, alot of good peeps on this site
Joe

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11 years 3 weeks ago #10976 by fearandfight
Stacker sorry to hear your bad news here, but what your Doc thinks age wise is useless under these circumstances it is what it is. We had a kid here 17 who had BC unreal. Seem BC doesn't care about what age anyone is for some reason. I'm from the states don't know much about Canada but we got a few Canadians here that may show up here. As far as being a candidate you are for a Neo unless when the surgeon goes in he sees cancer cells in the uretha or a stricture of the uretha which is a narrowing of the uretha. I myself was trying to get a Neo but my surgeon saw somethings he didn't like so I got the Indiana Pouch which now I am quite satisfied with. Make sure you find the best cancer facility up there because you want a good surgeon with this type of tumor. Best Wishes, Joe

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11 years 3 weeks ago #10972 by stacker
Pathology report doesn't really say what stage or grade.
Biopsies- High grade urothelia carcinoma invading lamina propria
Tumor- High grade urothelia carcinoma invading deep muscle
Going for another scope with the doc in Hamilton so he can come up with his diagnoses and treatment plan.
I just find the waiting the hardest part.

Dx Nov 07
Turbt Nov 07
RC/Neo-Bladder Dec 07
T3 N1 bladder carcinoma
Feb 08 4 cycles chemo Gemzar&Cisplatinum
May 09 Dx Lymph node enlargement
June 09 10 cycles Radiation
July 09 Mets in Lungs & Lymph node
July 09 started chemo Abraxane (every 3 wks)

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11 years 3 weeks ago #10951 by mznoregrets
Hi Stacker,

Sorry to meet you here... and , yes, there are quite a few of us in our 40's. I think there are even a few in their 20's and 30's too - can't swear to that though. Let us know your stage and grade and what kind of treatments you're looking at - most of us have been there too. God Bless, Holly

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