Hi,
I am 5 weeks post radical cystectomy with an Indiana pouch. i know I made the right decision and I ha gotten so much support from the people in this group, I am hoping you can help me now.
- I have had so much difficulty getting the right supplies. My doc and his nurse made it sound so easy, but until I found someone that was covered by my insurance was a nightmare and now hey keep sending me the wrong thing. Any suggestions of a good provider? Or how to deal with these providers more effectively?
- though I have been self-catheterize ping every 2 to 2.5 hours, I still find myself leaking periodically. i have put a bandaid over the stoma which helps, but should I be doing anything differently?
tHanks in advance for anysuggestions, or advice.
plk