Questions about being diagnosed?

12 years 7 months ago #39317 by danal22
Replied by danal22 on topic Questions about being diagnosed?
Thank you for your response. It's great to know that the language is different for MRIs. I'm going to ask my uro/gynecologist about this tomorrow, as I hadn't had a chance to see the report prior to my last appointment.

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12 years 7 months ago #39308 by Patricia
Replied by Patricia on topic Questions about being diagnosed?
Dana,
MRI language speak is a whole lot different than Ct speak...here is an article from U. of Penn that if you read through you will get a better understanding of what they mean by T 1 or T 2.
Hope this helps. Do let us know what they find tomorrow.
radiology.rsna.org/content/212/1/5.full
pat

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12 years 7 months ago #39303 by danal22
Replied by danal22 on topic Questions about being diagnosed?
The uro/gynecologist is doing it tomorrow. Do you know what th T1 in the report means?

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12 years 7 months ago #39302 by Patricia
Replied by Patricia on topic Questions about being diagnosed?
WEll trabeculation in and of itself means thickening....so the pathologist kind of repeated himself....as for the fluid...he doesn't know...could be old blood.. but with your prolapse of the uterus its probably causing some blockage within your bladder and its good that a cystoscope is being done as that should be more definative. Are you having your gyn do this or a uro?
pat

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12 years 7 months ago #39298 by sara.anne
Replied by sara.anne on topic Questions about being diagnosed?
You will no doubt get some answers to your questions after your cystoscopy exam. Bladder cancer manifests itself in different ways in different patients. With me it was what seemed to be recurrent UTI's....with others it is blood in the urine. Some people have no real symptoms at all.

You should be proud of yourself for all the research you do!!! A few doctors do not appreciate patients who do this, but a lot do understand and are more than willing to share their knowledge and decision-making with you. Sounds as if you have a good one. The problem comes in when patients get hooked on "for profit" schemes that promise to CURE cancer....just be a little judicious on where you find your information. OF COURSE, this site is perfectly fine!!!

Will be thinking of you and wishing you the best of luck on your exam. Please let us know how it goes.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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12 years 7 months ago #39295 by danal22
Questions about being diagnosed? was created by danal22
I'm just wondering if anyone had any reports that sounded like this:

The bladder is abnormal with diffuse irregular thickening and apparent increased trabeculation, although it is incompletely distended. In addition, there is heterogeneous high and low T1 signal within, suggesting proteinaceous fluid or blood products. Bowel loops are grossly unremarkable. No adenopathy or ascites.

I had a pelvic MRI a few weeks ago and this is what the report said. I saw a uro/gynecologist last week and am going back on Monday for a cystoscope. I was honestly more worried about ovarian cancer. Bladder cancer never crossed my mind, but the more I read about it, the more I realize that I have a lot of the symptoms. The Dr. didn't tell me she was looking for cancer, just that she wanted to look inside my bladder before she does my hysterectomy. I am 35 and have been having these problems for over a year. I now have a Rectocele and a Cystocele and Uterine Prolapse. I seriously feel like everything is falling out of me and just like I'm really falling apart. Everything is happening so fast. My family tells me I spend too much time on the internet, but I feel like knowledge is power and I only have one life and I want to know as much as I can. It proved helpful to me at my last appointment. When discussing options, she didn't have to explain what everything was to me because I already knew, so we just sat and discussed the pros and cons of different procedures and decided together what was best for me.

If you could tell me if you've had a report like this, or help me understand more what it means, I'd really appreciate it.

Thanks,
Dana

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