Neo Bladder and Catherizing

13 years 9 months ago #32569 by Silk
Replied by Silk on topic Neo Bladder and Catherizing
Hi,

Thank you for your kind words to me, and your mother-in-law sounds as is she is amazing woman.

Having had bladder cancer, and lung cancer, yes I have the right lung removed, I always think of the people that have it so much worse.

I live in a very active community here in Miami, and there is a 3 mile bike/jogging trail. A few months ago I saw a man on a skate board with no legs, he was pushing himself with both of his hands moving the skate board. Seeing that man so determined to over come so very much made me realize how someone else can always have it so much worse, and to be thankfull for each and every day.

I work 9 hours a day in a very prestigious condo, and cath, every 2 1/2 hours and not at all concerned/embarrased, etc. of what I must do. Getting up at nite also every 2 1/2 hours also becomes a way of life. I get dinner every night and up a 4:00 a.m., get ready for work, do breathing exercises for my lung, and bicycle for 10 minutes. I also go to the pool for 20 minutes each night and walk and then one lap back and forth across the pool.

I am not trying to impress anyone, but want everyone that has "issues" in their life, be it cancer, or any health issue, to know "you don't choose what happens to you" "but you can choose how you respond".

Thank you again.
Silk

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13 years 9 months ago #32498 by Melodie
Replied by Melodie on topic Neo Bladder and Catherizing
My mother-in-law had her RC at age 80 and the doctor was giving her a neo...this was 10 years ago; due to her heart stopping twice during surgery, they didn't finished the job. She was in so much pain afterwards that she never returned for the doctors to finish the job. She has worn Depends and changes them every 2 hours around the clock. I don't know how she does it. I would have been so sleep deprived I am cerain I would have gone insane by this time. But she never complains and you would never know she has this concern to manage. How amazing people can be. Silk, you also are an amazing person and an inspiration to others.

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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13 years 9 months ago #32437 by Silk
Replied by Silk on topic Neo Bladder and Catherizing
Hi Mike,

Thank you for your response.

Living in Miami, I enjoy each and every day, for life is a "beach".

Silk

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13 years 9 months ago #32417 by mmc
Replied by mmc on topic Neo Bladder and Catherizing

Silk,

I LOVE YOUR ATTITUDE!!!! I live by the same concept.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 9 months ago #32412 by Humpy
Replied by Humpy on topic Neo Bladder and Catherizing
at-a-girl!!! great attitude. A small price to pay for life.

Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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13 years 9 months ago #32411 by Silk
Replied by Silk on topic Neo Bladder and Catherizing
Hi Jim,

Thank you for answering.

I have to cath for the rest of my life. The neo tilted to the side and the surgeon does NOT recommend a sling.

I never complain about the "issue", "you don't choose what happens to you," "but you can choose how you respond."

Please keep in touch.

Silk

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