Proposed solution for Neo incontinence

14 years 9 months ago - 14 years 9 months ago #26297 by Silk
Replied by Silk on topic Proposed solution for Neo incontinence
Webs,

I am so happy to hear you have decided not to have the "sling". I Googled "sling for neo bladder" and a few woman had major problems, infections, blood, the "sling" adheared to the neo causing a lot of pain during voiding and still had to cath.

I do not know what I would have done a year and a half ago without this wonderfull site and the many that answered, and knowing you are not alone helps so very much.

Before my bladder removal my surgeon even recommended this site and I had told him I had found this site to be so informative, with caring and honest people, it truly was a blessing.

I hope others read our replys and questions and it will help all who are/will possibly face this issue.

Hope and attitude are so very important, and this site has given both to me.

Silk

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14 years 9 months ago #26287 by Webs
Replied by Webs on topic Proposed solution for Neo incontinence
Thank you Silk, but I had already decided that the surgery was to dangerous. I like my survival odds to be better than 50/50.

Webs;)

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14 years 9 months ago #26282 by Silk
Replied by Silk on topic Proposed solution for Neo incontinence
The surgeon did explain and he would not recommend a "sling" for a cancer patient, a dropped bladder but not a patient that had bladder cancer. To many problems, infections, return of cancer, etc.

Silk

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14 years 9 months ago - 14 years 9 months ago #26281 by Silk
Replied by Silk on topic Proposed solution for Neo incontinence
Hi,

I had a neo bladder put in a year ago.

Just had my yearly cat scan and bladder scope and all is great, however, I am not able to void either. I still drink a lot of water for the kidney function but I cath. every 2 1/2 to 3 hours day, at work too, and also at night.

I spoke to my surgeon about a solution and he advised nooooo sling because of more possibility of cancer returning and this is common in women that have their female organs removed, the bladder flops.

I have adjusted well with the situation and it is what it is, it could be so much worse.

Please give it a lot of thought before you would have the surgery for a sling.

My surgeon has been in the Miami paper, that is where I am, for his proceudures for bladder removal and also on TV.

If you have any questions you can e mail me on my on site email.

I do not go on this site often.

A warrior,

Linda/Silk

Linda.

I removed your email address if you put it here on the forum it gives your direct email to the world. If someone posts to your online email the system will email you letting you know you have a email in your account. We are all about personal privacy and online safety I hope you understand.


Cynthia

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14 years 10 months ago #25755 by mmc
Replied by mmc on topic Proposed solution for Neo incontinence
Wow! Seems like the doc could explain that it is medically necessary since the neobladder did not work "properly".

Good luck in any case!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 10 months ago #25716 by Webs
Replied by Webs on topic Proposed solution for Neo incontinence
Mike,

I briefly considered a conversion.

Pro's: no more incontinence, being able to see where to put the catheter.

Con's: Insurance will not pay unless it is a medical necessity, another long surgery and recovery time, the chance of something bad happening while on the table.

My family and husband are not ready to take that chance. I have a 9 year old and a 13 year old who are just now starting to trust that mommy is ok.:dry:

So for now a conversion is not on the table. Maybe when I win the lottery to pay for it:lol: and they a little older.

Webs:kiss:

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