Not diagnosed but scared, need kind words

15 years 4 months ago #22493 by Cynthia
Replied by Cynthia on topic Not diagnosed but scared, need kind words
If need be you are not very far from Rochester University Hospital Dr. Edward Messing is one of the tops in the country as far as blc. Even if you do not wish to traval that far for treatment he would be a good bet for a second opinion.

www.stronghealth.com/services/urology/team/messingbio.cfm

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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15 years 4 months ago #22492 by Patricia
Replied by Patricia on topic Not diagnosed but scared, need kind words
Hi Obbie.....took a look at Roswell Park...not a huge team there and they talk about prostates a lot!! Female bladder cancer is not always a specialty...but i'm getting the horse before the cart.
www.roswellpark.org/Site/Patient_Care/Types_of_Cancer/Bladder/The_Bladder_Team

See what they have to say Monday and then go from there. Be a strong advocate for yourself and always consider a second opinion. I know Memorial Sloan is a bit of a trip but they are really good.
Pat

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15 years 4 months ago #22491 by obbie66
Replied by obbie66 on topic Not diagnosed but scared, need kind words
Cynthia, I will try to take your advice. It's hard for me to relax under the best of circumstances, let alone this medical stuff! Thanks for replying to my post. Your words really make me feel better.

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15 years 4 months ago #22490 by obbie66
Replied by obbie66 on topic Not diagnosed but scared, need kind words
I don't think I have female issues...I'm just about 100% certain the blood came from my urine. Just had a pelvic exam and normal Pap two weeks ago, in fact. I also check my cervical mucus frequently and look for oddities, just because I'm obsessive. I did that after seeing the little pink spot on the t.p. and saw no blood in the vaginal secretions.

What was the cause of your symptoms, if not a tumor?

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15 years 4 months ago #22489 by obbie66
Replied by obbie66 on topic Not diagnosed but scared, need kind words
Pat, thank you very much for your informed reply! I live near Buffalo NY, home of Roswell Park Cancer Center. My dad is a prominent radiologist in town, so I have connections if I need to pull strings. I will let you know how things go.

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15 years 4 months ago #22488 by obbie66
Replied by obbie66 on topic Not diagnosed but scared, need kind words
Ed, thank you very much for your reply. I will certainly let you know what happens.

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