Thank you Sara Anne - No, my mother never lived outside the US (I've lived in Africa, I understand the schistosomiasis connection with this type of bladder cancer). Her risk factors include being a hairdresser, thus exposed to analine dyes, and a life-long history of recurrent UTIs and cystitis.
Thanks for confirming Moffitt as a good choice for this very rare cancer. Do you have any knowledge or opinion about Dr. Dipen Parekh at the University of Miami?
uhealthsystem.com/doctors/profile/134106
He, and the center appear to be very good. Her urologist has referred her to Moffitt, I would like her to get a second opinion and am looking for a center in addition to Moffitt.
Thanks again -
Sue