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Facing Another BCG Shortage

7 years 4 months ago #52467 by Frenchie69
Replied by Frenchie69 on topic Facing Another BCG Shortage
I cross my fingers and will keep in touch.
Thank you again,

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7 years 4 months ago #52459 by sara.anne
Replied by sara.anne on topic Facing Another BCG Shortage
Really happy to hear that your treatments are now underway!!! And I am hoping that you NEVER have another relapse!!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 years 4 months ago #52458 by Frenchie69
Replied by Frenchie69 on topic Facing Another BCG Shortage
To follow up as promised, I got my first BCG injection. 5 more to go. After that, cytoscopy every 4 months. My tumors were high grade, just like the first time ten years ago. I hope to get a few more years without a relapse. Crossing my fingers.
Thank you for your replies. There were very helpful.

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7 years 4 months ago #52434 by Frenchie69
Replied by Frenchie69 on topic Facing Another BCG Shortage
I got a message from my urologist today saying they had received their shipment of bcg, I am seeing him on Thursday. Things are looking up. Will keep you up to date.

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7 years 4 months ago #52428 by sara.anne
Replied by sara.anne on topic Facing Another BCG Shortage
At least here in the US we do not have a shortage now. My posting of the information about Sanofil was to note that it MAY happen next year after Sanofil quits making BCG. Have no idea what the situation might be in Thailand.

Were your tumors low grade or high grade? Particularly if they were low grade, a wait of a few months should not be critical. Has your doctor explained WHY the delay in receiving BCG? Shortage of supply? Shipping issues? You might check with a different urological practice just to see if they are having the same problem.

Hope you get this figured out!!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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7 years 4 months ago #52426 by Frenchie69
Replied by Frenchie69 on topic Facing Another BCG Shortage
My treatment has not yet started because my urologist hasn't yet received his batch of BCG. My operation (removal of superficial non invasive tumors) took place a little over 3 months ago Sept. 1st). What are the risk of the cancer reappearing quickly?

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