First BCG Treatment

Hi Laurel!
CindyB just published her experiences with her first BCG on page 5 of the thread just below this on the Forum (topic "just curious if this could mean more.") It is an excellent summary!

From my own experience, the first treatment is not bad at all. After the two hours "holding time" are over, I felt crampish and had to go very often. Had a bit of blood show up also. And the next day I was a bit fatigued. Over the next 5 treatments the symptoms intensified. I did go through the maintenance regimen also (once a week for three weeks every three months.) The longer you go the more pronounced the side effects are (and this shows that it is WORKING!) If they become bothersome, the dosage can be reduced to as much as 10%. By the end I was at 1/3.

It is very do-able, and well worth the effort.

Good luck to you!

Sara Anne

Hello Laurel... I just wanted to say welcome to our forum and that I am glad you found us as you start your BCG treatments. I can't answer your question because BCG was not part of my treatment plan, but I can definitely relate to the being scared part. I think everyone here has felt the same when first hearing those words from the doctor.

There are members here who have very similar diagnoses as yours and have been through the BCG regimen. I'm sure some of them will reply to you, and there are some current BCG threads going on right now as well. If you see a post by another member that interests you, please feel free to join in the thread as well.

Again, welcome. I'm sorry you had to seek us out because of a bc diagnosis, but I think you will find kind people with very helpful information here.