I'm so happy to report that for the second year in a row Florida has recognized July 2013 Bladder Cancer Awareness month statewide. It takes some work but it can be done. I just returned yesterday from spending a week in Tallahassee promoting BC awareness throughout our state Capitol. Handed out...

A recent surgical procedure (AAA, but that’s another forum) required use of a Foley catheter – a Fr 14. The procedure went as planned and I awoke feeling fine – and hungry from not being allowed to eat for nearly two days. A few hours after wolfing down a salad and something they called pot...

It has been a long since I\'ve posted on the forum but wanted to share great news for Jim and give hope to those who may have stage IV bc like Jim. Today\'s CT, which is 2.5 yrs from Jim\'s diagnosis, shows no cancer. To say we are thrilled is an understatement. We are blessed and grateful. For...

It’s looking more and more like I’m going to have to resort to self catheterization to help empty my neobladder. I’ve pushed and strained to void until I have muscle soreness and still feel the need to go 20 minutes later. I’ve had the self catheter procedure demonstrated but still have...

Took my neobladder in for its 6 month checkup yesterday. CT scans with contrast, urine retention test, blood tests. Uro is pleased with recovery. No signs of cancer and everything looks good with the neobladder and intestines. Only negative point was ultrasound showed I am retaining about 250 ml...

Andy is going home to be with family, mainly due to an infection from a stent. He has been fighting bladder cancer for several months. Are prays are with him. Here\'s a memory for you.

I remember when I started this journey in March of 2008, I wondered if I would ever make it through. I\'ve just completed my 4 yr check with an MRI and a neobladder performance check(that is a pee in the bucket for volume and speed followed by an ultrasound look at the neo to assure it is empty or...

2 years ago I had a large bladder stone removed twice as all of it wasn\'t crushed or removed the first time. Recently, I noticed that after a round of golf, I have gross hematuria. I have also felt like I have something inside making my bladder sore. Sort of the same feeling as when I had a bladder...

just spent 9 more days in the hospital with an infection -- VRE, as it turned out. after surgery i spent 7 days. this last one really sucked but i\'m doing home infusion of antibiotics thru a picc line and will be done soon. sheesh.

Well, on Jan. 30 I had it all out (radical cystectomy & prostatectomy plus neobladder construction) at Hartford Hospital by Dr. A.M. Meraney (formerly of Sloan Kettering and the Cleveland Clinic) and everything seems to have gone very well. Now i\'ve had the Foley out and am doing my daily...

I’ve turned the corner. Recovery from bowel resection three months after RC/prostate and neobladder surgery was painful and the associated diarrhea/constipation cycle made life miserable. I was beginning to wonder if this was as good as life would be from now on. It wasn’t a comforting...

Hi everyone, haven\'t been on the site for so long, I should have as many people have helped me here but I have just had no time. Most of the regulars know my problem, my husband had a neo bladder as well as his prostate removed, (had bladder and prostate cancer) then he was found to have lymph...

This isn’t to draw sympathy but to relate my experience with bladder cancer so others can make their own decisions and judge their recovery. The good news is that I am cancer free and expect to live a long happy life. Had RC 6/28/11 at IU Health, Indianapolis, sent home (Louisville) after three...

Macie, tell us more. If you have T2 bladder cancer you have invasive bladder cancer and the bladder needs to come out and a new diversion made. Why did they put the stent in? Blocked kidney? And no it should not hurt. You may have a bladder infection. What have you had done so far and where are...

Mr. Marx or can I call you Groucho? I felt that you would get a better response if your post had its own thread and it deserved it own so it has been moved here. I remember my first reaction to having my bladder removed was that I would rather die I was in the best shape of my life and 47. But...

Yes, decision time. I am having trouble reconciling the description of bladder replacement surgery with all the positive reports of people following surgery. History. I have been having more and more trouble for years. I first sought treatment early 2010. Nothing was done but check urine...

I know it\'s been a while since I\'ve posted. But I am curious if anyone has developed this recent change. Had Neo-bladder op almost 2 years out now (NOV) recently have blood in the urine. Some undefinable discomfort in abdomen. Got a call into my Surgeon and will go for Urine tests I am sure....

I am now post surgery at MD Anderson. My surgery was on August 24 and I have been here ever since. The bladder, prostate, and lymph nodes were removed as planned. The post tests on all organs showed no cancer anywhere other than in the bladder. So, I am cancer free at this time, YEAH !!!! It was the...

On 9/11 --- I remembered along with the rest of our country --- but for me I also celebrated this year ---- it was 9/11/10 --- when I was wheeled in surgery --- on 9/11/11 as I remembered those who were lost --- I also remembered all those who helped me make this year.

I\'ve found that most neo-bladder recipients/bladder cancer survivors usually come to a point at which they discover the value of humor. Taking ourselves a little less than seriously is actually a way of maintaining a healthy mindset, and helps us to deal with the \"new normal\". I hope others can...