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Thanks. I\'m not complaining. I consider all this a minor miracle. I\'m just curious what steps people used to get control.
Obviously I d/n have the same sensation to tell me I\'m full at night, so getting up every two hours is useless because my neo bladder already let loose. I\'m supposing I won\'t be \"normal\" until I expand the bladder and can hold it for four hours. Perhaps by then I will be able to hold it while asleep and, as you said, get up halfway thru the night. I had to do that before the surgery anyway due to BPH, so no big deal.
Bladder cancer diagnosed 10 Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 6 May, 2010.
It does take some time and I have noticed it is kind of a dog chasing its tail process. As you begin to gain night control, you will sleep longer which will still have your neo doing its thing so it seems like you are not making progress but if you look closely, you really are getting better. Eventually you start to wake up before your neo lets go or during and it eventually becomes more reliable. Its frustrating, but keep doing the execises and hang in there.
Red, You may want to ask your doctor/surgeon about about a perscription for physical therapy for pelvic floor muscles. I went for 14 weeks. It really helped alot. It helped build confidence.
As far as the exercises, I would do them twice a day while in therapy, and about 3 months after. I only do them (roll ins/outs) once a day now.
Roll in\'s: (ball) squeeze in, count to 10, relax 5. 10 times
Roll outs: (band) pull out, count to 10, relax 5. 10 times
Kegels: hold for 10, relax 5. 10 times
Bridges: thrust up, hold for 10, 30 times
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan