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  • 2 years 10 months ago
    #33084
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emo What\'s worked for night time continence

I\'m curious what has worked for gaining night time incontinence. My doctor directed me to wake every two hours to empty--not the most successful process, plus I\'m dead tired in the morning.
Age: 50
Bladder cancer diagnosed 10 Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 6 May, 2010.
UMC Tucson
Private Message 2013-05-25 05:17:20
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  • 2 years 10 months ago
    #33087
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  • Humpy
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    • Posts: 237
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Re:What\'s worked for night time continence

Red,
Limit fluid intake about 4 hours before bedtime.
continue to do these exercise\'s
medicalcenter.osu.edu/PatientEd/Materials/PDFDocs/exer-reh/physical/IncontinenceExerProg.pdf

Be patient. It took me nearly a year for nightime, and still not totally dry all the time. I get up once a night to void, about four hours.

Remember, still a small price to pay for life.
Age 53
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan
Private Message 2013-05-25 05:17:20
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  • 2 years 10 months ago
    #33090
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Re:What\'s worked for night time continence

Thanks. I\'m not complaining. I consider all this a minor miracle. I\'m just curious what steps people used to get control.

Obviously I d/n have the same sensation to tell me I\'m full at night, so getting up every two hours is useless because my neo bladder already let loose. I\'m supposing I won\'t be \"normal\" until I expand the bladder and can hold it for four hours. Perhaps by then I will be able to hold it while asleep and, as you said, get up halfway thru the night. I had to do that before the surgery anyway due to BPH, so no big deal.
Age: 50
Bladder cancer diagnosed 10 Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 6 May, 2010.
UMC Tucson
Private Message 2013-05-25 05:17:20
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  • 2 years 10 months ago
    #33091
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Re:What\'s worked for night time continence

It does take some time and I have noticed it is kind of a dog chasing its tail process. As you begin to gain night control, you will sleep longer which will still have your neo doing its thing so it seems like you are not making progress but if you look closely, you really are getting better. Eventually you start to wake up before your neo lets go or during and it eventually becomes more reliable. Its frustrating, but keep doing the execises and hang in there.

Lee
Private Message 2013-05-25 05:17:20
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  • 2 years 10 months ago
    #33099
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Re:What\'s worked for night time continence

Any suggestions as to how often to do these exercises?
Age: 50
Bladder cancer diagnosed 10 Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 6 May, 2010.
UMC Tucson
Private Message 2013-05-25 05:17:20
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  • 2 years 10 months ago
    #33101
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  • Humpy
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    • Posts: 237
    • Alive & Well

Re:What\'s worked for night time continence

Red, You may want to ask your doctor/surgeon about about a perscription for physical therapy for pelvic floor muscles. I went for 14 weeks. It really helped alot. It helped build confidence.

As far as the exercises, I would do them twice a day while in therapy, and about 3 months after. I only do them (roll ins/outs) once a day now.

Roll in\'s: (ball) squeeze in, count to 10, relax 5. 10 times
Roll outs: (band) pull out, count to 10, relax 5. 10 times
Kegels: hold for 10, relax 5. 10 times
Bridges: thrust up, hold for 10, 30 times
Age 53
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan
Private Message 2013-05-25 05:17:20
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