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This is the period where the mine takes over and sends the downer message. The adrenalin is pumping big time during the surgery and immediate early recovery period. Then........ The real work begins and things slow down and the hiccups in recovery begin to weigh on the brain. I would find my emotions on an hourly roller coaster. Little (and BIG) things really wolloped me more than they should.
So, with that said....... Keep your conversations positive. And don\'t allow him to get too mired in a depression. These challenges he is facing are indeed disheartening; but I know of very few people who have gone through a major sickness that haven\'t had some kind of setback during recovery.
Keep his eyes on the prize! Family, Friends, Grandchildren, anything that is near and dear to him. THAT\'S why he going through this!
Light a man a fire and he is warm for an evening.
Light a man ON fire and he\'s warm forever.
08/08/08...RC neo bladder
New Man! [/size]
You are absolutely right that the clot is a very dangerous situation. Our family is all too aware of those dangers. Several of my family members have a genetic clotting disorder that increases the risk of DVT and stroke. We lost my little sister when she was 26 because of it. I do not have it but my other sister, my dad, my uncle, several cousins and my niece and nephew do, unfortunately.
He has been put on Coumadin and they bridged it with Lovenox until he was at therapeutic levels. They had him on heparin after surgery but because he had never gotten a clot before they felt he was safe without blood thinners when he was discharged from the hospital. Well now that has changed and I am sure he will be dealing with it for quite a long time.
He is frightened of the clot traveling to his lung or brain, which is a very real risk.
The good news is, that he is getting his appetite back, and seems to be able to keep himself hydrated and is starting to feel better. His mental outlook appears to be improving. But this is definitely a huge change for his life. It is a heavy load.
He certainly hasn\'t given up and has been willing to do what is needed to fight for his life. I am inspired by him. And by all of you.
I am back among the functioning people again. Whew!!!!! That was a tough row to hoe!!!
Don\'t let your Dad be alone to too long. He will need help and support from all that love and car for him. If he needs someone to talk to, he can get in touch with me and I would be happy to help him along. I just went through my RC on 16 May... so I think I can give him some fresh viewpoints and help keep him positive.
Thank you Jack. Hoping all is going well for you following your surgery. I will tell my Dad about this forum and let him know there are others that have gone through this that are willing to share their experiences with him.
It would be nice if you could post a new post in the invasive section that talks about your experience. For some of us here it has been quite a while.
Having information from folks who are just out of surgery and the early stages of recovery is helpful (as you know) for folks.
Did you walk a lot? How long were you in the hospital, how are you doing now, etc. You know...all the stuff you wanted to know before you went and and tips on getting better faster that you did or didn\'t do.
Thanks and GLAD TO SEE YOU BACK ONLINE!!!
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 upper tract metastases(at 53)
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.