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  • 1048 topics ▪ Page 1 of 53
  • Topics in Category: Invasive Bladder Cancer Questions and Comments
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  • emo Important scared and confused Topic started by robertl 2 years 7 months ago
    by Patricia
    1 year 6 months ago
    19
    6037
    • robertl's Avatar
      Topic started by robertl 2 years 7 months ago
      i had surgury 2 weeks ago for a 7cm tumor in my bladder that invaded the muscle and poss lymph invasion. biopsy came back hi mitolic rate cancer. i am getting a port for chemo and applied for assistance for a pet scan. my oncologist wants to do 3 rounds chemo every 3 weeks then to my urologist to...
    • Patricia's Avatar
      Last reply by Patricia 1 year 6 months ago
      CeCe, please start your own post. We have no idea if you have non-invasive or invasive bladder cancer. You talk of chemo yet talk about another round which makes me think you have non-invasive and are actually talking about BCG which is not chemotherapy. If you know your pathology please let us...
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  • emo Mother 99 bladder cancer - Kidney maybe failing Topic started by Ms. P 2 weeks 1 day ago
    by Jmema
    2 weeks 21 hours ago
    2
    110
    • Ms. P's Avatar
      Topic started by Ms. P 2 weeks 1 day ago
      Hello, my mother was diagnosed with bladder cancer in 2012 at the age of 99. She also has a heart mummer and heart is not beating properly. Hospice has been called She is so very weak and tired all the time. I hate to see her suffering and can not help. She was in severe pain and the nurse said...
    • Jmema's Avatar
      Last reply by Jmema 2 weeks 21 hours ago
      Ms.P. I know this must be very hard for you. No matter how old our parents are it never seems like we have them long enough. I hope she crosses over without a lot of suffering. She will be moving on to a place where she will not suffer another moment. I am sending you my prayers. Blessings....Jean
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  • emo "procedure done" Topic started by Celestel1st 2 weeks 2 days ago
    by Flamenco.
    2 weeks 1 day ago
    3
    111
    • Celestel1st's Avatar
      Topic started by Celestel1st 2 weeks 2 days ago
      The hospital called the TUR a procedure. I wish I could say it felt like a procedure. I'm still sore down there. At least it's becoming more generalized through the bladder area instead of feeling like he dug out my left side. Moving my bowels finally seems to have relieved that a lot. I...
    • Flamenco.'s Avatar
      Last reply by Flamenco. 2 weeks 1 day ago
      Glad your procedure went well, and hope the after effects are starting to ease off now. Now the worst part comes waiting for the results, but keeping fingers crossed for good ones, Diane
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  • emo INFERIOR VENA CAVA FILTER Topic started by Melle 1 month 20 hours ago
    by CatherineH
    3 weeks 5 days ago
    3
    139
    • Melle's Avatar
      Topic started by Melle 1 month 20 hours ago
      Has anyone on this forum had an IVC filter placed? Have there been any problems and how long has it been in place? My surgeon wants me to have one placed before my surgery. Any info would be appreciated. Thank you.
    • CatherineH's Avatar
      Last reply by CatherineH 3 weeks 5 days ago
      I know you dread yet another "procedure" but it sounds as if your doctor is trying to protect you from further complications and has your best interests in mind. Best wishes for things to go great and let us know how you are feeling when you can.
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  • emo New Neobladder Topic started by wsilberstein 1 month 3 weeks ago
    • Page:
    • 1
    by dukel
    3 weeks 5 days ago
    7
    1636
    • wsilberstein's Avatar
      Topic started by wsilberstein 1 month 3 weeks ago
      Even though I got my neobladder before my cancer became invasive, I'm posting on the invasive board because I figure more of you have experience with neobladders. I'm 3 weeks post op and had my foley removed today. I'm supposed to make sure I void every 2 hours, but I'd be thrilled if I made it more...
    • dukel's Avatar
      Last reply by dukel 3 weeks 5 days ago
      Warren, I just posted on your other thread before i noticed this one. Sorry, but please read. Hope you are doing better! P.S. Hey Jim! It's good to hear from you. It has been a while. Hope you are doing well. You look like you are doing great in picture. Wishing both you and Warren the best! Duke...
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  • emo CTs and invasive cancer Topic started by Celestel1st 1 month 3 weeks ago
    by Rockyiss
    1 month 1 week ago
    3
    299
    • Celestel1st's Avatar
      Topic started by Celestel1st 1 month 3 weeks ago
      Does a CT show if a mass in the bladder is invasive or will I have to wait and find out after the TURBT? I mean the Dr would not be doing a simple surgery through a cystoscope if he thought it was invasive, right? I will be under general anesthesia during it.
    • Rockyiss's Avatar
      Last reply by Rockyiss 1 month 1 week ago
      I had a ct scan that showed no tumors in my bladder . Five days later the Dr went in to look and found five tumors that he took out. don't have a clue why they didn't show up on the ct scan but I just don't put alot of stock in cts. When a Dr goes in and takes out the tumor he can get a bit of...
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  • emo Three years after cystectomy Topic started by rzuber 4 months 1 week ago
    by GroundedFlyer
    1 month 3 weeks ago
    12
    1568
    • rzuber's Avatar
      Topic started by rzuber 4 months 1 week ago
      This is my first time writing. I am 57 and was diagnosed with bladder cancer 4 years ago and in October 2010 had a cystectomy. I have always been very positive and I can not say enough about the treatment I received. I am very a athletic person and able to go back to playing handball, racquetball,...
    • GroundedFlyer's Avatar
      Last reply by GroundedFlyer 1 month 3 weeks ago
      Every day I'm vertical is a great day. Embrace the rain and the snow but especially embrace those close to you. They want you to be around.
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  • emo Its been 2 1/2 years now need ureter reattachment Topic started by mamatrausch 2 months 1 week ago
    • Page:
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    by mmc
    1 month 3 weeks ago
    7
    700
    • mamatrausch's Avatar
      Topic started by mamatrausch 2 months 1 week ago
      Well its been a long while since I have posted but I come on the site and try to keep informed on everyone, I had been complaining for a year or more about flank pain and last Thanksgiving while on vacation in Florida my left ureter became totally blocked. I have had 4 nephrostomy tubes placed (2...
    • mmc's Avatar
      Last reply by mmc 1 month 3 weeks ago
      Julie, Sorry you had so many darn complications and pain. :( Hope all goes well from here on. Mike
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  • emo Radiation therapy after radical cystectomy Topic started by ammie 2 months 2 weeks ago
    by Cynthia
    2 months 2 weeks ago
    2
    274
    • ammie's Avatar
      Topic started by ammie 2 months 2 weeks ago
      My husband had RC surgery for a very rare, nested variant bladder cancer. He's doing really well but apparently even after telling us he got all the cancer and the margins were clean, the surgeon now says there was still cancer in the margins and he needs radiation therapy. Is anyone familiar with...
    • Cynthia's Avatar
      Last reply by Cynthia 2 months 2 weeks ago
      ammie, Sorry to see you here but welcome. I do not believe we have anyone right now that has had radiation following Radical Cystectomy in the group right now. I however had 40 sessions prior to my Radical Cystectomy. If there is any questions you have about it all please ask and I will do my best...
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  • emo PET scan results Topic started by mmc 3 months 2 days ago
    by mmc
    2 months 3 weeks ago
    42
    1329
    • mmc's Avatar
      Topic started by mmc 3 months 2 days ago
      Just got off phone with the doc thirty minutes ago. Lymph nodes appear to be cancer. Not easy to biopsy because of blood vessels in the area. Lymph node up in my chest area is also lit up on PET scan. That indicates spread which is not good news. Surgery to remove kidney would not be curative...
    • mmc's Avatar
      Last reply by mmc 2 months 3 weeks ago
      Thanks Cheryl. I'm going to start a new thread over in the area I was hoping to not have to be in...Metastatic. All the best! Mike
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  • emo Here we go again? Topic started by mmc 3 months 2 weeks ago
    by dukel
    2 months 4 weeks ago
    44
    1693
    • mmc's Avatar
      Topic started by mmc 3 months 2 weeks ago
      So far I have been cancer free for 4 years and three months. It is beginning to look as though that may not be the case but it is not confirmed. A couple months ago I started having intermittent gross hematuria (visible blood in urine) ranging from a tinge of red in my urine up to a robust...
    • dukel's Avatar
      Last reply by dukel 2 months 4 weeks ago
      Mike, Just seen your news! Wow, Mike I am blown away! I am so sorry you and your family have to go through this again. I have been off the site for a while and was just checking in. How easy it is for us to start taking our good health for granted. I been very guilty of that lately. Sit here in the...
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  • emo really scared Topic started by jnevoso1 3 months 3 weeks ago
    by mmc
    3 months 3 weeks ago
    2
    441
    • jnevoso1's Avatar
      Topic started by jnevoso1 3 months 3 weeks ago
      HI All, I dont know where to turn bt i can really use some advice and hope. I am a 36 year old white male non smoker. I was diagnosed with bladder cancer in 2010. I ve done 12 treatments of bcg 6 of those with interferon. I have been being taken care of at sloan kettering in NY since july of 2012....
    • mmc's Avatar
      Last reply by mmc 3 months 3 weeks ago
      Jon, Sorry to hear about the progression to muscle invasion. It is not the end of the world although it is certainly scary as all get out when the surgery is in front of you. I had my bladder removed over four years ago and I'm still cancer free. If the comments about getting married are a hint...
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  • emo I'm back Topic started by wsilberstein 3 months 3 weeks ago
    by mmc
    3 months 3 weeks ago
    2
    399
    • wsilberstein's Avatar
      Topic started by wsilberstein 3 months 3 weeks ago
      I have posted this on the non-invasive board but am posting this here as well in case you guys have a different perspective based on your personal experiences. For those of you who don't know me a brief summary. I'm a pediatrician, diagnosed with TCC TaG3 + CIS 12 years ago. I was treated by TURB &...
    • mmc's Avatar
      Last reply by mmc 3 months 3 weeks ago
      I agree with you Warren. I'm sure that is not a surprise as you know I tend to take a more aggressive treatment path than some. At this point you pretty much know which direction this is going. Read this if you have not already: www.ncbi.nlm.nih.gov/pmc/articles/PMC2684254/ Mike
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  • emo need advice on chemo Topic started by Melle 3 months 4 weeks ago
    by Melle
    3 months 3 weeks ago
    2
    451
    • Melle's Avatar
      Topic started by Melle 3 months 4 weeks ago
      I was wondering who has gone through the cisplatin/gemzar chemo regimen and how they dealt with side effects, etc. I started my chemo last week and two days later was admitted to hospital for four days. I could not walk, nausea and vomiting really bad and I lost over 7 pounds in five days. The day...
    • Melle's Avatar
      Last reply by Melle 3 months 3 weeks ago
      Cynthia, Thank you for your advice. Since I have had this week off from chemo "to get stronger", I am feeling better. I still take the Zophran every day because there are times when I feel nauseous. But I am eating everything I can this week. I will be having my chemo closer to home now. I was...
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  • emo 5 years and counting... Topic started by mikeg 4 months 5 days ago
    by Cynthia
    3 months 3 weeks ago
    1
    425
    • mikeg's Avatar
      Topic started by mikeg 4 months 5 days ago
      It\'s been 5 years since my chemo and RC at Hopkins for Stage 2-3 bladder cancer. My oncologist \"discharged\" me...so no more CAT scans. (great they can cause cancer!?) He morbidly and jokingly said the cancer you die from will not be bladder cancer...I didn\'t take offense and I hope none of you...
    • Cynthia's Avatar
      Last reply by Cynthia 3 months 3 weeks ago
      Mike great to hear from you and that you are doing so well. Come back and see us more often the newbies can always use our hard won knowledge.
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  • emo Re:neobladder revision to treat hyper continence Topic started by loubrook 4 months 1 hour ago
    by loubrook
    4 months 1 hour ago
    0
    377
    • loubrook's Avatar
      Topic started by loubrook 4 months 1 hour ago
      Hi I have the same problem with hyper continence.I have neo since october 2010.The first 4 months it work perfectly,But for a reason my surgeon explain to me that this sometime happens.He never suggest that a surgery could correct this problem.I am used to cath by now, but I have the same question...
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  • emo neobladder revision to treat hyper continence Topic started by cindyduffy 4 months 4 days ago
    by cindyduffy
    4 months 4 days ago
    0
    398
    • cindyduffy's Avatar
      Topic started by cindyduffy 4 months 4 days ago
      I\'ve had my neobladder since 2005 -- hyper continent, but otherwise in excellent health. Has anyone heard of a revision surgery that corrects the hyper continence? I have no problems cathing, but am always thinking ahead to my later years when it may become more of an issue. Thoughts?
    • Read Topic Close
  • emo MOVED: Newly diagnosed bladder Cancer Topic started by wjjjcm 4 months 2 weeks ago
    by wjjjcm
    4 months 2 weeks ago
    0
    0
    • wjjjcm's Avatar
      Topic started by wjjjcm 4 months 2 weeks ago
      Hello, I recently was diagnosed with high grade bladder cancer. They removed the tumor and we had what was called a TURB preformed. The results of the TURB were: 1. Severe Urothelial Dysplasia 2. Muscularis Propria is represented and is uninvolved by Tumor What does all this mean? My doctor...
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  • emo Urine tests with Neobladder? Topic started by dukel 5 months 1 week ago
    by dukel
    5 months 1 week ago
    3
    579
    • dukel's Avatar
      Topic started by dukel 5 months 1 week ago
      Hi everyone, been a while since I checked in. I\'ve been busy doing the classic car thing and I needed a break from the site anyway. Hope everyone is doing okay. Hey Mike, I was checking in with a question on urine sample results, and noticed you recently had a thread on urine cytology after...
    • dukel's Avatar
      Last reply by dukel 5 months 1 week ago
      Thanks Danielle and Mike! I am somewhat familiar with the neobladder/infection problem, just don\'t know much about the whole neobladder/protein/kidney thing. Think I need to do a better job making all involved in the testing process more aware of the neobladder issue. I also need to learn more...
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  • emo RC surgery on November 14th Topic started by jaxmad13 6 months 2 weeks ago
    by CatherineH
    5 months 3 weeks ago
    5
    658
    • jaxmad13's Avatar
      Topic started by jaxmad13 6 months 2 weeks ago
      On October 16th my husband had his first CT scan following his chemo treatment and it was found that the tumor had actually grown and is now blocking his right kidney. The chemo did nothing for him so they cancelled his last treatment and scheduled surgery for November 14th. I had decided earlier...
    • CatherineH's Avatar
      Last reply by CatherineH 5 months 3 weeks ago
      I am very sorry to hear that it is in the lymph nodes but it seems he weathered the surgery pretty well coming home after only 5 days. I hope he is continuing to heal and getting strong for the next phase of treatment. I know this is not the news you ever wanted to hear, but your oncologist will...
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