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  • 731 topics ▪ Page 1 of 37
  • Topics in Category: Newly Diagnosed
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  • emo Starting with tests Topic started by dctx 2 weeks 5 days ago
    • Page:
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    by DougG
    20 hours 4 minutes ago
    11
    361
    • dctx's Avatar
      Topic started by dctx 2 weeks 5 days ago
      In the past 8 months or so I had my 3rd sample with blood. The first time it happened I had been to my physician with the complaint that I had to go to the bathroom too often, it took forever to get just a little bit of liquid out, and when it finished I still felt like I needed to use the...
    • DougG's Avatar
      Last reply by DougG 20 hours 4 minutes ago
      DC, Glad to read your good news! Anita
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  • emo discouragement Topic started by itsamama 3 weeks 7 hours ago
    by pemquid
    23 hours 3 minutes ago
    18
    767
    • itsamama's Avatar
      Topic started by itsamama 3 weeks 7 hours ago
      Have been visiting this forum, since DH (Dear Hubby) was diagnosed in March. On April 10th Dr removed 5 tumors. Pathology: aggressive, superficial. Since then he has been (off&on) bleeding & passing clots (as of Monday, Dr says that's "normal" - he is on blood thinner due to afib. Quintuple open...
    • pemquid's Avatar
      Last reply by pemquid 23 hours 3 minutes ago
      In our household I'm the one who's had bladder cancer, but my husband has afib and had all kinds of problems with warfarin. His dr. put him on pradaxa, and it's made a world of difference. Pradaxa is much moire expensive than warfarin, even though we have insurance, but in the long run I suspect it...
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  • emo in waiting for sugery Topic started by Celestel1st 2 months 1 hour ago
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    by DougG
    3 days 2 hours ago
    6
    582
    • Celestel1st's Avatar
      Topic started by Celestel1st 2 months 1 hour ago
      I started seeing blood in my urine at least a month ago. I actually saw red and orange in my urine much longer ago. I attributed that to eating beets, vitamens and such. A month ago there was no reason for it and I wiped blood with a *nice* pretty good sized clot (anyway good sized for coming out...
    • DougG's Avatar
      Last reply by DougG 3 days 2 hours ago
      Celeste, Glad your surgery is behind you and that the BC is non-invasive. The 3 month check ups are most important. Anita
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  • emo Post 6 BCG treatment Questions. Topic started by realdeal 5 months 3 weeks ago
    by realdeal
    1 week 1 day ago
    17
    1394
    • realdeal's Avatar
      Topic started by realdeal 5 months 3 weeks ago
      Hi guys. In three days, Monday Dec. 3rd. I have my doctors appointment following the 6 BCG treatments. I would appreciate your input in regards to what questions I should be asking the doctor. After the #6 treatment which was 9 days ago, the nurse explained Mondays appointment would be brief and...
    • realdeal's Avatar
      Last reply by realdeal 1 week 1 day ago
      Well Sara Anne and everyone else, the cancer is still there after the second set of BCG treatments. It is starting to look more like the bladder is coming out? If so, all three doctors seem to lean towards having the bag, as I call it, on the outside. They claim all the other ways have the risks of...
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  • emo Mum diagnosed with TCC/UCC cancer in Kidney &mets Topic started by James from England 3 weeks 12 hours ago
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    by CatherineH
    2 weeks 1 day ago
    8
    495
    • James from England's Avatar
      Topic started by James from England 3 weeks 12 hours ago
      Hi I am new to this forum but could do with some support and/or words of encouragement. My mother is in her late 50s and recently had some blood in her urine. She has no other symptoms at all. She has had a CT scan and the results are small tumour consistent with TCC (also know as UCC) in her...
    • CatherineH's Avatar
      Last reply by CatherineH 2 weeks 1 day ago
      Hello James... I am so happy to hear this news about your Mum. I hope they can pinpoint her kidney problem and get it treated and taken care of quickly. I want to add that I don't want you to dismiss the value of a CT scan if it is suggested in the future. It is a window to see inside us and is a...
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  • emo Biopsy Results - what does it mean - help Topic started by Wicket1 1 month 4 days ago
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    by sara.anne
    1 month 3 days ago
    6
    1012
    • Wicket1's Avatar
      Topic started by Wicket1 1 month 4 days ago
      My dr is on vacation, so I just got the call from his partner saying I have grade 1 non aggressive BC but there was some aggressive cells too. At my TURP, the dr put in the chemo drug which was released after an hour (can't think of the drug name). This dr said there are 2 ways to follow up,...
    • sara.anne's Avatar
      Last reply by sara.anne 1 month 3 days ago
      Sort of chiming in here late, but really echo what Alan and Mike have told you. Will also comment on your stating that your urologist is not a "good communicator." You and your urologist will becoming best of friends in the next few years, as you will be seeing him/her every three months for a...
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  • emo bcg and bleeding Topic started by ric132 1 month 2 weeks ago
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    by Phillip
    1 month 1 week ago
    7
    391
    • ric132's Avatar
      Topic started by ric132 1 month 2 weeks ago
      Hi to everyone and hope all is well as can be. I just want to ask if everybody bleeds the day of bcg treatment, this is my second set of 3 treatments and i had blood all night long the next day just some small spots. still stings when voiding for 3 to 4 days after treatment. Does this all sound ok....
    • Phillip's Avatar
      Last reply by Phillip 1 month 1 week ago
      Mike, I'm glad that I stumbled on this site a couple of weeks ago. In reviewing the literature on Dr. Lamm's classic 1994 research study on Bladder Cancer Recurrence and Mega Vitamins, I came across an old post from this site. I really appreciate the information you and others have provided. It...
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  • emo Recently had TURBT - 5cm tumor removed Topic started by twinzrock 1 month 2 weeks ago
    by Rockyiss
    1 month 2 weeks ago
    3
    224
    • twinzrock's Avatar
      Topic started by twinzrock 1 month 2 weeks ago
      Hi, I am new to this forum. I am a 48 year old mother of twin girls. I was recently diagnosed with a bladder tumor and just had surgery last friday to have it removed. I go in tomorrow morning to have my catheter removed and they should have the results back from pathology. My question is, what...
    • Rockyiss's Avatar
      Last reply by Rockyiss 1 month 2 weeks ago
      Hi Tammy, I am sorry you have to be on this site and I hope that everything turns out ok for you. I had five tumors they were ta grade 2 , which means they were not invasive. I had chemo put in my bladder once after the surgery. That was seven years ago. It has come back several times but each...
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  • emo Pre-cancerous pathology before DX? Topic started by ambarian 1 month 2 weeks ago
    by slwa
    1 month 2 weeks ago
    2
    162
    • slwa's Avatar
      Topic started by slwa 1 month 2 weeks ago
      Hi, Folks-- Quick question. Did any of you have pathology that showed papillary clusters of cytologically bland urothelial cells or low-grade urothelial neoplasm at any time before getting a TCC diagnosis? Thanks in advance, and best to everyone. Sara
    • slwa's Avatar
      Last reply by slwa 1 month 2 weeks ago
      Thanks for chiming in anyway, Catherine. Best wishes.
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  • emo Diagnosed, removed, waiting on biopsy report Topic started by shihtzudaddy 10 months 1 day ago
    by Nix
    2 months 5 days ago
    72
    5797
    • shihtzudaddy's Avatar
      Topic started by shihtzudaddy 10 months 1 day ago
      I am 55 and had 2 episodes of blood when urinating. I saw my doctor that day, untrasound the next. The 2nd day I was notified they found lesions in my bladder and I was referred to a urologist. That only took one week thanks to a persistant wife and helpful scheduler at the urologists office....
    • Nix's Avatar
      Last reply by Nix 2 months 5 days ago
      No, we tried lowering the dose about the 19th, but my bladder had enough of BCG, so we stopped there. Bad news, I really wanted to get to 30, good news I haven't had a re-occurrence in 5 1/2 years. My bladder is completely healed, so my Uro feels if need be in the future we could still go back to...
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  • emo had the tur-bc friday Topic started by chucks27 2 months 1 week ago
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    by seabreeze
    2 months 1 week ago
    8
    449
    • chucks27's Avatar
      Topic started by chucks27 2 months 1 week ago
      ok guys made thru the surgery just fine , had to stay over night i am home now with the cath untill i see the doc on thur. having a lot of baladder spasums (have pills to help with that) taken drugs for pain ansd i got the pain LOL... i dont normaly take pain killers but i asked for these. as long...
    • seabreeze's Avatar
      Last reply by seabreeze 2 months 1 week ago
      congratulations on the good news Chuck, God's blessing upon you!!
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  • emo Need Advice Topic started by Mrsj100 3 months 1 week ago
    by GKLINE
    3 months 1 week ago
    3
    473
    • Mrsj100's Avatar
      Topic started by Mrsj100 3 months 1 week ago
      My 85-year-old father was diagnosed with Stage 2TA. Or 2TB bladder cancer and the urologist is recommending a radicalcystectomyand urostomy. I am concerned because of potential complications and the fact my dad has problems changing his hearing aid battery. The doctor said chemo and radiation would...
    • GKLINE's Avatar
      Last reply by GKLINE 3 months 1 week ago
      Please ask your Dr. if he is doing this surgery with the DiVinci robotic system. I understand the surgery is much less invasive than the open surgery that many of us here have had. But, as many have already said..... get that second opinion. A good Dr. will always welcome another Dr. "look see"...
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  • emo Concern about being outside the odds Topic started by jingles916 5 months 4 days ago
    • Page:
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    by mmc
    3 months 1 week ago
    7
    1022
    • jingles916's Avatar
      Topic started by jingles916 5 months 4 days ago
      I am searching for information about bladder cancer. I have always been the outside of the odds. I have recently had female problems that led me to a new gyno. In 2010, I had cysts on my ovaries that were removed and the surgeon failed during the surgery and poked holes in my small intestine...
    • mmc's Avatar
      Last reply by mmc 3 months 1 week ago
      Is it in your bladder? I'm not reading anything that points to your bladder. Mike
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  • emo BCG drug cost??? Is there any help out there?? Topic started by seabreeze 3 months 3 weeks ago
    by seabreeze
    3 months 3 weeks ago
    4
    510
    • seabreeze's Avatar
      Topic started by seabreeze 3 months 3 weeks ago
      looking for the best economical way to get this drug....any advice, idea's? thank you for your support! seabreeze
    • seabreeze's Avatar
      Last reply by seabreeze 3 months 3 weeks ago
      Thank you for your reply. This was very helpful. Again thank you for this information.
    • Read Topic Close
  • emo Seeking serious treatment advice Topic started by wjjjcm 4 months 1 week ago
    • Page:
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    by mmc
    3 months 3 weeks ago
    11
    1069
    • wjjjcm's Avatar
      Topic started by wjjjcm 4 months 1 week ago
      Hello, I was recently diagnosed with High Grade Bladder cancer which was negative for Lamina propria invasion and muscularis propria was represented and uninvolved by tumor. I was told for bad news that the good part was no muscle invasion. I guess the cancer was considered still within the walls...
    • mmc's Avatar
      Last reply by mmc 3 months 3 weeks ago
      Sara Anne is correct and her advice is in line with the treatment protocols advised by NCCN and those have the HIGHEST good outcomes. Whoever advised you to stop BCG and go with systemic chemo does not know much about bladder cancer. That is not good advice. If you want supporting advice get it...
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  • emo Dad has bladder cancer Topic started by bmat 3 months 4 weeks ago
    by sara.anne
    3 months 3 weeks ago
    1
    535
    • bmat's Avatar
      Topic started by bmat 3 months 4 weeks ago
      My dad was just diagnosed w/ BC. He had surgury to remove 5 tumors on the bladder. We are waiting for the oncology report. I don\'t want them to make the mistake of going to their Dr. in Toledo for the usual treatment. I would like advise on where he needs to make his appointment for treatment....
    • sara.anne's Avatar
      Last reply by sara.anne 3 months 3 weeks ago
      From what you said, I assume that you have not received the pathology report yet. That will tell you a little better what he might be facing. I am not sure what is meant by "chemo." Perhaps he will be prescribing BCG? This is not traditional chemotherapy, but involves the instillation of the BCG...
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  • emo Father has Cancer Topic started by DaddysGirl 7 months 4 days ago
    by Rick
    3 months 4 weeks ago
    16
    1606
    • DaddysGirl's Avatar
      Topic started by DaddysGirl 7 months 4 days ago
      I just found out my father has stage 3 bladder cancer. Told my mom the highest stage....but online shows a stage 4? They said radiation won\'t help and have not mentioned chemo. They went last week and removed the tumor yet he continues peeing blood and hurting. They do a CT scan tomorrow to see if...
    • Rick's Avatar
      Last reply by Rick 3 months 4 weeks ago
      bmat, I\'m sorry to hear about your dad. You are wise to seek a second opinion from a specialist. More people should do so. Rick
    • Read Topic Close
  • emo 5 years and counting... Topic started by mikeg 4 months 6 days ago
    by mmc
    4 months 4 hours ago
    12
    1075
    • mikeg's Avatar
      Topic started by mikeg 4 months 6 days ago
      I left this message in another forum so I hope it\'s ok to post it here as well. Sorry if this is against some rule. I hope a moderator can work this out. It\'s been 5 years since my chemo and RC at Hopkins for Stage 2-3 bladder cancer. My oncologist \"discharged\" me...so no more CAT scans. (great...
    • mmc's Avatar
      Last reply by mmc 4 months 4 hours ago
      Celebrate EVERYTHING! Congrats Mike! Mike
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  • emo Pain after radical cystoprostatectomy Topic started by Tintagle 4 months 1 week ago
    by Tintagle
    4 months 1 week ago
    2
    452
    • Tintagle's Avatar
      Topic started by Tintagle 4 months 1 week ago
      Hello out there! This is my firt time ever to join a forum. 6 days ago i underwent radical cystoprostatectomy and ilial conduit and am now at home. Pain and abdominal swelling pretty tough. Needing to take pain pills every 4-6 hrs Good Doc support no signs of infection can anyone tell me how long...
    • Tintagle's Avatar
      Last reply by Tintagle 4 months 1 week ago
      Thank you for your helpful comments, George. Im gonna follow your lead in dicontinuing or greatly reducing the narcotic pain pills (lortab 10 ) and toughing iy out as u said.
    • Read Topic Close
  • emo Need help Topic started by Hudsongrl 4 months 2 weeks ago
    by griz
    4 months 1 week ago
    12
    1209
    • Hudsongrl's Avatar
      Topic started by Hudsongrl 4 months 2 weeks ago
      My husband has just been diagnosed as having T1 lowgrade bladder cancer. Solitary 3 cm tumor removed a week ago. Now what? I read most t1\'s are high grade... What is the treatment for low grade? I am terrified. We have a skilled surgeon/uro/oncologist, but, he is not probiding us with any...
    • griz's Avatar
      Last reply by griz 4 months 1 week ago
      Hi, I recently had a tumor removed from the ureter and had a stent. I was really fretting about it coming out, but it was a piece of cake. I didn`t even realize it was out until doc told me I was done. Tell your husband not to worry! Regards, Griz
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