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  • 107 topics ▪ Page 1 of 6
  • Topics in Category: American Bladder Cancer Society News and Updates
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  • emo We are attending Social Media for the Nonporfits Topic started by Cynthia 8 months 2 weeks ago
    by Cynthia
    8 months 2 weeks ago
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    • Cynthia's Avatar
      Topic started by Cynthia 8 months 2 weeks ago
      We are in Cambridge MA at Microsoft Geek Center over looking the Charles River. This is an all day conference on what is new, what is coming and how to use what is for nonprofits using the internet to serve their communities. Training like this helps us decide the directions available for us to...
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  • emo BCG Not Good News Topic started by sara.anne 10 months 3 weeks ago
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    by upnorth
    10 months 2 weeks ago
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    • sara.anne's Avatar
      Topic started by sara.anne 10 months 3 weeks ago
      Cynthia just received this update from a representative of Sanofi Pasteur regarding the shortage of ImmuCyst/TheraCys®, BCG: Dear Cynthia, Several weeks ago you contacted me requesting information about the status of our BCG-IT product for treating bladder cancer. You may recall we had suspended...
    • upnorth's Avatar
      Last reply by upnorth 10 months 2 weeks ago
      Could someone start a Sanofi-Pasteu Update Thread and put this information and the two past releases all together in one place. Thanks Mark
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  • emo Shortage of BCG -- Bacillus Calmette-Guerin Topic started by Cynthia 11 months 1 week ago
    by rbmc
    10 months 3 weeks ago
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    1845
    • Cynthia's Avatar
      Topic started by Cynthia 11 months 1 week ago
      Shortage of BCG -- Bacillus Calmette-Guerin As many of you already know there is indeed a shortage of BCG -- Bacillus Calmette-Guerin. Because of this more and more people are having treatments put on hold due to this shortage. Today we talked to a representative of Sanofi-Pasteu one of the two...
    • rbmc's Avatar
      Last reply by rbmc 10 months 3 weeks ago
      I was put on hold for treatment after my surgery back in May. After they got BCG, I got some kind of silly infection, which delayed the process even more. Hoping to start 3 treatments next Friday.
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  • emo We are 4000 strong! Topic started by CatherineH 1 year 2 months ago
    by CatherineH
    1 year 2 months ago
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    • CatherineH's Avatar
      Topic started by CatherineH 1 year 2 months ago
      I just saw that our number of forum users is at 4000! That\'s a new milestone and I want to acknowledge everyone who uses this forum to navigate your bladder cancer journey. Cynthia and your team... thank you!
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  • emo ABLCS Announces New Board Member Topic started by Cynthia 1 year 3 months ago
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    by mmc
    1 year 3 months ago
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    • Cynthia's Avatar
      Topic started by Cynthia 1 year 3 months ago
      The ABLCS Board is pleased to announce that Sara Anne Gardner has been elected to fill the vacancy on our board left form the expiration of Dr. Karen Greene’s term. Sara Anne is invaluable to this forum and is staring work as our volunteer coordinator we know her input and the sharing of her...
    • mmc's Avatar
      Last reply by mmc 1 year 3 months ago
      Congrats and thanks for serving Sara Anne!!!! Mike
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  • emo MOVED: BLC and Hurricane Preparedness Topic started by Cynthia 1 year 8 months ago
    by Cynthia
    1 year 8 months ago
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    • Cynthia's Avatar
      Topic started by Cynthia 1 year 8 months ago
      As we watch the whether forecasts it is going to be hard to know what to believe until it arrives. We ourselves are well inland but could have a category 1 pass over our roof; if it did it would be the first time in anyone’s memory. For that fact alone no one can tell us what to expect if this...
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  • emo 1st Annual ABLCS Planning Session Topic started by Cynthia 1 year 9 months ago
    by Cynthia
    1 year 9 months ago
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    • Cynthia's Avatar
      Topic started by Cynthia 1 year 9 months ago
      4th Annual American Bladder Cancer Society Annual Meeting and 1st Annual Planning Session Our State of the Union is sound we are not wealthy but we are meeting our bills and growing. For a nonprofit to be founded in this economy to be able to say that is very good news, we have came a long way and...
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  • emo Sylvia Ramsey has now published her third book Topic started by Cynthia 2 years 4 months ago
    by Cynthia
    2 years 4 months ago
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    • Cynthia's Avatar
      Topic started by Cynthia 2 years 4 months ago
      Our Vice President Sylvia Ramsey has now published her third book. This one is a children’s book called Merchild Land. Her first book was a collection of poetry and her second is a very good mystery. She has kindly set it up so that all proceeds from her books go to the American Bladder Cancer...
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  • emo Christian does a fundraiser!!! Topic started by Cynthia 2 years 7 months ago
    by Melodie
    2 years 7 months ago
    3
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    • Cynthia's Avatar
      Topic started by Cynthia 2 years 7 months ago
      Christian our Gracie\'s grandson recently had a lemonade stand to raise money for the ABLCS. This was his idea and his own work and we will be sending him out a certificate for his efforts he raised 101.00! [image]...[image] [image]...
    • Melodie's Avatar
      Last reply by Melodie 2 years 7 months ago
      Christian, Wow! Way to go! You probably did better than I would if I had a garage sale...I\'m not much of a sales person. You\'ve made your grandma and those of us here on the forum proud.
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  • emo Bladder cancer awareness bracelets available now! Topic started by Cynthia 2 years 10 months ago
    by Flamenco.
    2 years 8 months ago
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    4524
    • Cynthia's Avatar
      Topic started by Cynthia 2 years 10 months ago
      We are working on an online store to offer bladder cancer awareness merchandise. We already have in stock silicone bladder cancer awareness bracelets. The color for bladder cancer is orange but we did a mixture of our logo colors and they are a distinctive swirl of orange, blue and purple with...
    • Flamenco.'s Avatar
      Last reply by Flamenco. 2 years 8 months ago
      Same here, I think people are a bit embarassed to ask what the bracelet is for - What does seem to be working is what I have put on my desk - One of my girls bought me a china money box a few years ago, it is in the form of a white bull terrier with a leg cocked up and and you can see that he is a...
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  • emo MOVED: August 5, 2010 --CBS News With Katie Couric...BC Topic started by New Diag 7 2 years 9 months ago
    by New Diag 7
    2 years 9 months ago
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    • New Diag 7's Avatar
      Topic started by New Diag 7 2 years 9 months ago
      Tomorrow\'s CBS Evening News will feature Bladder Cancer A story on bladder cancer is scheduled to air Thursday, August 5th, at 6:30 PM Eastern on the CBS Evening News with Katie Couric. Check your local listings for local broadcast times.
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  • emo WE MADE Yahoo news!!!! Topic started by Cynthia 2 years 10 months ago
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    by GKLINE
    2 years 9 months ago
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    • Cynthia's Avatar
      Topic started by Cynthia 2 years 10 months ago
      tinyurl.com/38pa6vf
    • GKLINE's Avatar
      Last reply by GKLINE 2 years 9 months ago
      This can only help bring attention to getting attention early. Maybe one day we won\'t have the need for the Invasive forum. People will get detected early because they are informed. Great Job
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  • emo Plans on July 17th Topic started by vgau 2 years 10 months ago
    by Cynthia
    2 years 10 months ago
    1
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    • vgau's Avatar
      Topic started by vgau 2 years 10 months ago
      I think it\'s great that bladder cancer has received enough press to finally have a day specified for it. Long way to go, but a good start. I know there are things happening all over and wondered what kinds of events have you heard of? I haven\'t heard of anything special in Colorado. Vi
    • Cynthia's Avatar
      Last reply by Cynthia 2 years 10 months ago
      The resolution to declare July 17th National Bladder Cancer Awareness Day is still in committee working its way through the process. When it is closer to a vote we will do a mailing and use other ways to contact you all to ask your congressmen to support it. The American Bladder Cancer Society has...
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  • emo Advocacy Idea # 1 Topic started by Cynthia 2 years 10 months ago
    by Cynthia
    2 years 10 months ago
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    • Cynthia's Avatar
      Topic started by Cynthia 2 years 10 months ago
      Advocacy Idea # 1 Call your local news paper and ask the health reporter to do an article on bladder cancer. You may give them the contact information or web address for the ABLCS and we will be happy to help them.
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  • emo Press Release for BC Awareness month Topic started by Melodie 2 years 10 months ago
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    by mmc
    2 years 10 months ago
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    • Melodie's Avatar
      Topic started by Melodie 2 years 10 months ago
      Cynthia, I got in touch with the Seattle Times neewspaper which is has a rather large distribution...asking them to consider a story in regard to Bladder Cancer Awareness month - July. Two concerns: 1. I did send them to this website; we have something on the forum section which talks about...
    • mmc's Avatar
      Last reply by mmc 2 years 10 months ago
      I just sent a \'news tip\' to 9 News in Denver. Maybe they will pick up the story as well. Told them about the Awareness Day as well as about ABLCS with a pointer to the forum so they can see what we are all about. Will let everyone know if I hear back from them. A lot of tv stations have a way...
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  • emo To all Forum readers: ABLCS needs YOUR help! Topic started by mmc 2 years 10 months ago
    by Cynthia
    2 years 10 months ago
    3
    1423
    • mmc's Avatar
      Topic started by mmc 2 years 10 months ago
      I\'m trying this with a different title hoping that more people will see this and lend a hand. If you have gotten ANYTHING out of this website and/or forum, ABLCS can really use your help. Please go to the web site at this link: ABLCS Review and say some nice words about ABLCS. The more reviews...
    • Cynthia's Avatar
      Last reply by Cynthia 2 years 10 months ago
      Thank you for the kind words everyone! We are up to 13 reviews please keep going and done\'t leave it at the unlucky 13.
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  • emo HEY EVERYBODY Topic started by sara.anne 2 years 10 months ago
    by Cynthia
    2 years 10 months ago
    1
    873
    • sara.anne's Avatar
      Topic started by sara.anne 2 years 10 months ago
      I just followed Cynthia\'s request (at the top of the Forum page) and filled out the questionnaire for qualifying for the grant of $5000 for the American Bladder Cancer Society. After, when I clicked to read other reviews, I WAS THE ONLY ONE THERE!!!! Let\'s get busy and move forward on this....it...
    • Cynthia's Avatar
      Last reply by Cynthia 2 years 10 months ago
      Thanks Sara Anne! One down and nine to go!!!
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  • emo Growing our community! Topic started by Cynthia 3 years 1 month ago
    by Cynthia
    3 years 1 month ago
    0
    1034
    • Cynthia's Avatar
      Topic started by Cynthia 3 years 1 month ago
      In order to help others find us when they are in need, please help us by doing the following:Try to use the full term and not an abbreviation as someone doing a search will not type in RC but they will type in Radical Cystectomy. Another thing that will help us out is to join us on Facebook....
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  • emo Our Board Topic started by Cynthia 3 years 1 month ago
    by Moonerj
    3 years 1 month ago
    5
    1256
    • Cynthia's Avatar
      Topic started by Cynthia 3 years 1 month ago
      ** This thread discusses the content article: Our Board ** Cynthia Kinsella – President and CEO When diagnosed with invasive bladder cancer at 47 I was terrified, I had a disease that I knew so little about that I had to look up the symptoms. I felt totally alone and did not know what...
    • Moonerj's Avatar
      Last reply by Moonerj 3 years 1 month ago
      Thank you Board Of Directors for making this site and group available to bladder cancer patients and caregivers. This is the very first support group I found and helped me with my bladder cancer journey. I just hope that my group in Canada (www.cbcan.org) can be as successful in assisting bladder...
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  • emo Question about donations... Topic started by Mel09 3 years 2 months ago
    by eddiek
    3 years 2 months ago
    1
    1036
    • Mel09's Avatar
      Topic started by Mel09 3 years 2 months ago
      Is there any way of knowing if someone donates in my father\'s name? We want to be able to properly thank them. Melissa
    • eddiek's Avatar
      Last reply by eddiek 3 years 2 months ago
      Melissa, If you provide your e-mail or U.S.P.S. address to Cynthia at: \n This email address is being protected from spambots. You need JavaScript enabled to view it. , we\'ll send you this information once we return from Chicago. Thank you. Ed K.
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